Dear Nicole,
I am sorry for your sister and her husbands next few months of sickness.
I wish I couldn't say I know what she is going through but unfortunately I know it twice. Both my mother and my MIL died in the last 2 years from different cancers. My children are now 5 and 3. I was very close with my mother (and miss her EVERY day) and very close to my MIL (and miss her more than I realized I would). My mother fought for almost a year through treatment and then chose hospice at home to die. From the very start my husband & I chose to give our children all the information we could while still holding onto hope. We told them of the cancer (melanoma), and how the doctors thought it was from too much sunburn, that the treatment could make G-Jo (my mom) very sick and tired and look different, and that G-Jo and her doctors were doing all they could to fight her cancer in her body. When it was apparent that my mother was dying from her cancer, my daughter helped on the nights I slept over to help care for my mother. My DD would help my mother get ready for bed by bringing my mother her toothbrush, a wet wash cloth, and help to put lotion on her hands. My son would come to visit and cuddle with my mom in her hospital bed at home. We all read bedtime stories together. And we cried together. My children saw and see me cry often. When they ask why I tell them, "I miss my mom", "I am angry my mom is sick", "I am sad Daddy's mom is sick in the hospital", and those sorts of things. We read many books to prepare them for death WHEN we were certain death was looming (Rudy's pond", "Dribbles the cat","I miss you-a first look at death"). We watched and hoped for the treatment to work but only when we knew it wasn't helping, did we sit down and speak with our children about death. When my mother died my daughter was almost 4 and my son was almost 2. My daughter went to the funeral, my son did not.
This year, my children watched their "grandmum" be diagnosed with endometrial cancer, go through chemo, visit at Christmas in remission, return home to get sick again and be hospitalized and die in May. All of us flew to England to be with our family and both my children went to their Grandmum's funeral.
I am thankful that I stiffled my fears and let my husband & my daughter fly on an airplane to visit his mum in hospital in England. I am thankful that my children got to share in the care and love given to both our parents while sick. I am thankful that my children now, when they see me sad or crying, say to me,"are you sad that G-jo & Grandmum died? Do you miss them? Well that is okay because they are in our hearts." I am thankful that my children saw their Daddy crying and learned the compassion to go to him, comfort him, cry with him, and hug him. I am thankful that we still talk about their G-Jo and Grandmum and share stories, pictures, laughter and tears.
Our choice was to be open, be honest, listen to them, read to them, and try to be examples of love, compassion, caring, and family. I am happy with our choice and I think my children are wonderful loving compassionate people because of it.
My heart pulls for you and your family during this difficult time. Your sister will need support from you for her own time to grieve and console her husband during his grief.
Please tell your sister to be open and honest with her children but let them guide the conversation. They will change the subject when it is enough for them to handle. My heartfelt condolences.
A.
P.S. In reply to the religious aspect. My husband is aethiest and I am a recovering Catholic. My husband honestly told my children he believes that you live one life and when you die it ends so make this life count and make good choices and be honest and openly love and learn and help others. I told my children I believe in life after death, just like nature dies and renews, and that my hope is to be reunited with those I love. Also that they are always with me in my heart & mind. So, you don't have to be "christian" to find solace or give comfort to children during death. Death is a necessary part of life.