She ok?
Does anyone know of another medical support site where those of us who are medical messes can go?
(My mess is literally 18 conditions /auto-immune disorders. Not so bad there were
Others worse)
It had support forums that covered everything including parenting and partnerimg in our states
Gamma G I hate IE so don't use it. I do use Mozilla-what are you using? I will try it?
Dawn B that was actually me that posted and suggested it LOL
no she isn't a mama-I think she cannot have kids if I remember right. But though younger than I some of us she
is our "illness mama" in a way
Thanks I will check out the facebook page. I guess I can't get away from FB. I deactivated my account twice but things
keep coming up that its 'go there' including dh *sigh* lol
They could be updating servers or their software or perhaps the site crashed or got hacked and they're making repairs. I would probably give them some time to get the community back up and if there's a "report issues" or "contact" link then use it.
I have been getting odd messages on several sites now, if I use IE or Mozilla they work fine. I "know" my child support enforcement site is not gone or closed down and it is one of those giving me odd messages too.
Try changing the browser and clearing your cache, this might help. I went right to it on IE and google chrome. It looks like a good site. I have fibro too.
I don't know of any sites or forums, but I am also a medical mess. Everyone always says I should be on the show Mystery Diagnosis. I just wanted to reach out to another mom like myself, and I would love to find a support group or forum for people like us. Please let me know what you find out. You can e-mail me at ____@____.com. Thank you so much.
Is she a mother here on this site? There is a website people have mentioned here in the past, something along the lines of bad diagnosis or it's not in your head, or something like that. Anybody remember what I'm trying to say? Hopefully the right mom will read this and answer!
Dawn
Did you contact them using the link contact us? The forums said "Service Unavailable at this time" when I clicked on them. That is weird. Maybe they are updating the site. I see other articles posted today.
Good luck.
the site is still up, but not the forums, it seems. My dd has about 6 diagnoses, all of them "invisible". But there is a facebook page of the same title (just type "but you don't look sick" in the facebook search window. I don't know if it's the same, though.
