L.Z.
Hi R H,
It may be a typo and he just checked the wrong box. I'd call his office and ask for an explanation on that one.
:) L.
Hi, thank you in advance for your helpful answers.
My Daughter has Stargardt's macular dystrophy. She has been wearing glasses for the last 5 years. At her last appointment, her visual acuity is now 20/200 both eyes (legally blind) but the doctor put "no glasses needed" on her IEP for the school district. This seems odd to me, it would seem as if she needs her glasses now more than ever.
Does any one know why he would think she no longer needs them?
I'd love your input, and/or experiences!
Thanks, and have a great day!
Hi,and thanks for all of your suggestions.
What I have to remember about this disease is that there is something anatomically wrong with her eyes. It is not a simple matter of her eyes having problems relaying the information correctly to her brain ( which glasses help correct) but that her macula is actually "dying".
It is macular degeneration, juvenile onset.
Cannot correct what is not there.
So, it makes sense that glasses won't help. Thank goodness her Visual Impairment teacher helped explain this to me.
Thanks again!
Hi R H,
It may be a typo and he just checked the wrong box. I'd call his office and ask for an explanation on that one.
:) L.
Sounds like he made a mistake. Did you ask the Dr why he did it?
Hi RH,
Let me start off by saying that, I notice that you are in Long Beach and I am here in Clark County, Nevada, so the IEP protocol may be different for each of us. Here, where I am at, IEP are prepared while the whole IEP (this includes the parents) are present. A draft of the IEP is prepared ahead of time for the parent to review (usually at the parents request) ahead of time, but each item of the IEP is reviewed line-by-line and discussed during the meeting. This being the case, nothing in the IEP should be added without a parents knowledge or consent and nothing should be a surprise. If there was item in the IEP from a doctor that is contradictory of my information, then it would be discussed in during the meeting. I'm just trying to understand how this doctor's assessment can be in the IEP without you knowing ahead of time about it or it being discussed during the IEP meeting.
Anyway, assuming that you were not made aware of the doctor's assessment prior to or at the IEP, I would keep two things in mind: (1) the inclusion of this item in your daughter's IEP is a mistake, in which case you should make some phone calls to clear this matter up and request that they prepare an amended IEP if a mistake did occur; (2) you do not have to sign any IEP that you do not agree with. If this doctor examined her and found that your daughter did not require glasses, you are entitled to a copy of his report, you have the right to list your concerns that his assessment and findings are erroneous in your statement of parental concerns (in the IEP), and you have the right to submit a report from your own doctor indicating that your daughter does need glass for her condition.
In my opinion, first thing tomorrow morning, you need to get on the phone and ask your daughter's teacher the basis for this doctor's assessments, copies of all reports/docs that he prepared or support his conclusion, and request that your daughter's IEP be reconvened to address this issue. You do not have to sign any IEP that you are not in 100% agreement with.
Perhaps it was an oversight. After reading the post once I thought, why would 20/20 vision need glasses too. But after reading again I saw that it is actually 20/200. You may want to get that fixed, although it probably won't change any of the academic goals for your daughter.
Maybe it's just a mistake. What did the Doc. have to say about it.
Your question was a bit perplexing to me. The logical answer is, ask the doctor about it. Could have been a mistake. If not, he would have the answer.
I think you need to clarify with him. Perhaps he checked the wrong box, miswrote, etc. Was he the same dr. who completed the eye exam? It sounds like a miscommunication and is easily resolved. As much as we want teachers to adhere to IEP's, you need to clarify it so a teacher doesn't make her take off her glasses.
As a side question, how is the school with an IEP? We are considering getting one for our daughter, who has Tourette Syndrome. different challenges I realize... Was it easy to do? Is your daughter looked down on because of it? Has it helped her in school?
Hi RH,
That does seem strange. Having worked in school districts before, it may be that the doctor put down, "no glasses needed" because she already has them. That would indicate to the school district that it's something THEY don't need to deal with. Maybe...
Honestly, I would ask the doctor and your contact at school about it.
Good luck.
M.
http://www.biomagscience.com/rare_eye_disease_of_infant_r...
I don't know if this will help but if I were in your situation I would certainly give it a go. It would be a very small investment and it certainly won't do any harm.
Blessings
I'd say that the Dr simply made a mistake. After all Dr's are only human too, see way too many patients now (thanks to the current health care in our country), and just like us over stressed, over worked, multi-tasking mommies, are also prone to the occasional error... I'm sure it requires nothingg more then a call to have the mix up fixed! :)
as a therapist who works with "special needs" children I strongly suggest thst you have the dr. revise his opinion it may make a huge difference down the road and she definately needs those glasses!
Have you asked him why he did that? He definitely needs to explain that to you, maybe even in writing since it is part of an IEP. It just seems so odd -- could he have made a mistake? Did he suggest she not wear her glasses at all? If not, he has some explaining to do!!!
What happens if she doesn't wear her glasses -- can she move through rooms without bumping into things? Can she read the board or read words in a book? Does she get headaches? All of these things would impede her ability to learn.
As a special ed mom, I know there are great doctors, teachers and staff who want to help my child. There are, however, some real bad apple out there and sometimes there is tricky stuff going on to protect school funds. I think you have to figure out if this is what's going on. You could talk to people in groups that advocate for people with similar vision problems, get a second opinion from another eye doctor, and, if it gets that bad, consult a special advocate or attorney.
Good luck!
You should ask the Dr.
Hi R H, the only thing I can think of is maybe they are not helping her at this point, so he see's no need for them. Did you ask him why he put no glasses needed? If not I would ask him. J. L.
I'm glad you found your answers.
Take care
and God Bless
B.
I am an IEP mother warrior. Dont sign the IEP until it has EVERYTHING your daughter needs. I suggest you join groups with disabilities. They're full of info. on what to do from mothers who have been, done these things.