Laryngomalacia

Updated on March 04, 2015
R.C. asks from Dallas, TX
8 answers

Please help! If there is anyone out there that has had a child with Laryngomalacia please help. My 6 week old son has Laryngomalacia and the Dr. wants to do surgery. I am not sure how I feel about a newborn having surgery. If anyone has delt with this please let me know. I am in freak out mode right now. I got a second opinion and both Drs. agree that we need to do the surgery. This is a rare case and only about 5% of babies that have this have to actually do the surgery. I guess I am in that 5%.

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T.O.

answers from Dallas on

If it isn't life threatening, then I'd get a 2nd oppinion.

I read on-line too that it usually resolves itself. But they say it's a good idea to keep the crib where they put their head, raised by 30 degrees.

Here's the site...http://www.cssd.us/body.cfm?id=464

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R.

answers from Dallas on

Surgery? My son had laryngomalacia as a baby and was a bit squeaky but grew out of it before he was a year old. I myself had trachea malacia and grew out of it by 9months old. It's always been my understanding that it's something kids grow out of... have you gotten a second opinion? Maybe something else is going on besided just softening of the vocal cords?

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D.S.

answers from Dallas on

I babysit for a little boy who has this. When he was little (birth to 6 months or so) the noise was AWFUL, but he has since grown out of it.
Is your son having lots of trouble breathing? Is he gaining weight?
What dr's have you seen about this? I would try and get a referral to a specialist out at Children's and see what they say (if you haven't been there already)

Good luck mama!

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D.R.

answers from Dallas on

Are they sure it isn't something he will grow out of? I have 6 mos old twins and my daughter had major projectile vomiting, made gasping/wheezing noise (sounding like she wasn't breathing) as well as a "rattle" noise when she breathed. She has since completely grown out of it. My pediatrician sent me to UT Southwestern to see a specialist. although they didn't suggest surgery for my daughter i just wonder if surgery can be avoided? i would get a 3rd opinion on this...

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A.K.

answers from Lubbock on

My son had it and he outgrew it. He went to a specialist at Cook Childrens(in Ft. Worth) and he said just listen to make sure it doesnt get worse. He said he should outgrow it between 1-2 years old.He only "squeaked" when he got excited but got worse when he was sick (his doctor put him on a nebulizer which helped him breathe better). I wouldnt worry about surgery. Get a second opionion!!
Email me if you got any questions.

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K.F.

answers from Denver on

My daughter was diagnosed with Laryngomalacia at four months old and I was told most babies out grow it around 18 months. I had to go to an Ear, Nose, and Throat doctor the first doctor told me nothing was wrong then I went and asked her doctor what she thought and told me she would refer me to an ENT. She also has reflux the first doctor I was taking her to put her on Zantac and it did not help but the ENT put her on another medication that is helping see if there is a medication that could help your son.

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K.B.

answers from Dallas on

R.,

My son did the same thing, his went away when he was about 6 months old or so, do not have surgery. Tell the doctor that you would just like to wait and see how it goes for the next month or so and don't want to rush into unnecessary surgery, then maybe find a new pediatrician.

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A.K.

answers from Dallas on

I don't know anything about it, sorry, but I did find this on wikipedia-

Laryngomalacia becomes symptomatic after the first few weeks of life, and may get louder over the first year, as the child moves air more vigorously. It generally resolves spontaneously by the second year of life. In rare cases (less than 5%), surgery is necessary. Most commonly, this involves cutting the aryepiglottic folds to let the supraglottic airway spring open. Treatment of gastroesophageal reflux disease can also help in the treatment of laryngomalacia, since gastric contents can cause the back part of the larynx to swell and collapse even further into the airway. In severe cases, a temporary tracheotomy may be necessary.

I might get another opinion, if I were you. I mean 5% only need surgery- is the doctor sure that your child really needs it, or will it resolve itself?

HTH, A.

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