T.C.
Just know there are good people and bad people out there; but a lot more good :) Ignore the haters; they are probably miserable in their own way.
I joined this website for advice and support but I have found that many of my responses were very negative and out right offensive. How can people pass judgement on me when they have no idea what I go thru day to day? They have no idea what lupus is or how it can affect your life and yes it can be fatal. But to those who gave me good advice and support, thank you! I really needed before and after all the ugly people who also responded, I need it more!
Just know there are good people and bad people out there; but a lot more good :) Ignore the haters; they are probably miserable in their own way.
report them - that's what I do... just keep reporting them as offensive over and over and over and over; eventually mamasource web masters will respond to your reports. Some people have nothing better to do then share their negativity. This is a helpful resource, and you'll get more good then evil out of it! Stick in there.
BTW - I have lupus; if you want to talk.
You know people can be so mean, I would try to ignore them. They have no Idea what you sre going through and until they do they will continue to be mean. I am so sorry to hear about your Lupas, I know people with that and it can be ruff. Oh my goodness you have a snake in your house, I would go crazy thinking it would het out in the middle of the night and crawl on me Ha Ha. I like snakes, but not in my house. My husband has always wanted a snake, but they scare me with kids around. Good luck with everything If you ever just need to talk I am here to listen. Pediatric Nurse J.
Some people are just miserable. I am sorry that you have received hateful feedback. It is easy for people to be mean on the internet. It is hard being a mom with a disability or a chronic disease. I have both and at times it seems impossible. I surround myself with positive happy people. Just ignore those that give you bad advice or have hateful things to say. Obviously they nothing better to do but try to make people feel as bad as they do.
You do what's best for your daughter and don't worry about what others think. Lupus can be depilitating and if you feel like she is better elsewhere, you are the best mom you can be. No one can live your life but you!
anytime you ask for an advice on a public sight or from any one for that matter, you're gonna get some that you'd rather ignore. and that's best thing you can do...ignore it. you asked for everyone one's opinion and that's what you got...their opinion. and you know what they say about opinions...hahahaha. if you feel that your are doing what is in the best interest for your daughter, then stick to it. as long as she is being properly cared for, then it shouldn't matter who she actually resides and it sounds like you are doing your best to spend as much time with her as possible and to be a good mom and that's what really matters. just love her the best way you can and take care of yourself...your absotulely no good to her in the hospital or worse.
Hi H.; I just wanted to tell you that I had lupus and the Lord healed me. Why? Only He knows. I'm grateful all the same. I will be praying for you. Out of curiosity, if you have been together for so long, and he is so wonderful, why hasn't he committed to being with you for the rest of your life? Just wondering...I thing you deserve marriage. Why? because you are obviously a very caring and loving person who desires to be valued, appreciated, and needed. I see that in your dedication and commitment to the number and variety of animals you have. If you think that he is as good as it is going to get for you, then you might also be dealing with low self-esteem. Sometimes we rather be accompanied by anyone as long as we have company. If you know what I mean. About myspace, doesn't feel great to be connected? You feel as if you are never alone...always someone to talk to, hugh? Here is the deal: life is way too precious to limit it to your circumstances. You have to choose to live it to its fullest. I think you want to experience more out of life, but feel stuck. A loving heart like yours needs to be invested in something greater than yourself. Why? Because those challenges causes us to discover gifts and tallents that we never knew we had and abilities that we never thought we could develop. Find a way to get around, and look for opportunities to reach out to others in your community who are in need of a friend. I think that you would make a very good friend. Be encouraged. <')))><
You and you alone can decide what the best situation for your daughter is. If you don't feel like you can take care of her full time then you are doing the right thing. Dont ever let anyone tell you that your wrong when all your doing is trying to take care of your lil one. I applaud you, not many mothers would make the sacrifice you are even if it was the right hting for the child. Stay strong and take care of yourself so when you do see your daughter your well e nough to really truly enjoy her. Take care
Just brush it off your shoulder, it sounds like there are some jealous people out there and plain mean people. They don't know what you have to go through with your disease. On losing weight, just what you eat, and do light excerise,2 or 3 times a week.I know that is easier said than done,But anyway don't worry about what anybody else says.