Gastroparesis

Updated on May 08, 2008
K.B. asks from Pemberville, OH
8 answers

My daughter was just diagnosed with gastroparesis. I was hoping to find someone who has a child with this problem. My daughter is 17 and has chron's disease. She had part of her bowel removed in January. Now she vomits and is nauseaous all the time. She also has back and stomach pain. I need to know if there is any hope other than having a feeding tube put in.

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M.H.

answers from South Bend on

I was diagnosed with gastroparesis when I was in college... I took Reglan and it helped but the side effects were very annoying. A gastric pacemaker was suggested and I looked into it. It is like a heart pacemaker but attached to the wall of the stomach. It sends electrical impulses to the stomach to make it digest where it otherwise wouldn't.
My gastroparesis eventually resolved itself. How, I don't know, but it is now "simply" IBS with colon spasms. So traded in one problem for another. Look into the gastric pacemaker.

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J.M.

answers from Indianapolis on

My nephew has chron's disease and is graduating with his PhD from MIT next month. I am sharing that to let you know there is hope. His doctor chose a combination of medications, diet changes, psychotherapy, monitoring to bring the disease under control as an alternative to surgery. There is a website for people and families dealing with the disease and you should consider looking for other doctors who specialize in solutions for Chron's. www.crohns.org/, http://www.livingwithcrohnsdisease.com/livingwithcrohnsdi..., www.chronsonline.com

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S.C.

answers from Indianapolis on

I know nothing about this, but wanted to let you know I will be praying for her, you and your entire family! As a mom of four, I know how aweful it is to see your child hurting and you can't "fix" it or take it upon yourself. You sound like a great mom! Good luck and if I hear of anyone knowing about this, I will definitly write you back!

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M.

answers from Cincinnati on

Chrons, IBS, and other issues are often misdiagnoses for gluten intolerance (called Celiac Disease). Celiac Disease/gluten intolerance definitely has a genetic component, so if these types of issues run in your family, it would be *really* a good idea to test for Celiac -- the best way to do this is to remove all gluten-containing grains and gluten-derivatives from the diet for 6 months minimum to see if the sypmtoms subside - you'll know it's likely a CD/gluten intolerance issue if her symptoms start to go away. This approach is free. However, there are diagnostic tests for Celiac Disease - here's just one site that discusses the many options:
http://www.enabling.org/ia/celiac/diag-tst.html

Here's a resource for reading more about Celiac Disease/gluten intolerance (symtpoms, etc.), in case your 17 yr old daughter's symptoms might match up:
http://www.celiaccentral.org/What_is_Celiac_/Symptoms/96/

Best of luck!

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J.D.

answers from Columbus on

Hello K.,
My 5 year old daughter was diagnonsed with gastroparesis when she was 3. Before we took her to Children's she would always vomit, gag, and constantly cry with her stomach hurting, and had very bad constipation. When she was diagnosed they put her on acid reflux and a powder I believe is called glyco??? The specialist told me that at her young age she would probably outgrow it with the help of the medicine. This medicine did wonders, because we were worried about feeding tube also. It's been almost a year since she took the powder. She still has a little problem with her bowels. I will get the correct name for the powder she was on and let you know.

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C.O.

answers from Columbus on

Get the book "The Makers Diet" his father is DR, and his mother if i remeber right was a homeopath. He only ever ate "real-whole" food, when he went to college he started getting all kinds of gastro problems, he had lots of test etc. but in the end (down to less than 80 lbs and nearly dead) he went back on natural foods, way more to the story than I can relate here. but i truly believe alot of our illness is brougth on by our horrible "so -called" food, you should be able to find the book, but if not you can borrow mine. i am at Shapers Salon in marion ###-###-#### C.

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D.K.

answers from Indianapolis on

Pay VERY close attention to her hip position. Make SURE she is in proper alignment. If the pelvic position is compromised, so are the organs, etc. within it. Makes PERFECT SENSE! The body's immune system is largely in the intestine, so keeping her immune system up is VITAL. This ALSO makes sense due to the fact that the body utilizes the bowel to get rid of waste that certainly can be toxic to the body.

I'd get the book THE DETOX DIET. Not necessarily to detox, but rather to understand the details of how the bowels function. Easy to understand and well written. On top of that, acquire a copy of PRESCRIPTION FOR NUTRITIONAL HEALING by Balch. You will understand what nutrients are the cause of the Chron's. You need to understand what foods, etc. make it worse and what things help. EDUCATE EDUCATE EDUCATE YOURSELF. You'll both be glad you did!! AND......I've be VERY surprised if you don't find that you are able to heal the body naturally WITHOUT a feeding tube!! Doctors may tell you otherwise. HOWEVER.....I've "proven" doctors wrong so many times, I don't even know where to begin.

The human body has an AMAZING capacity to heal itself IF given the proper stimulus, which may very well include specific nutrient. Certain nutrients trigger other action/reactions in the body. If you don't have them....things aren't optimally functioning if at all.

Get on a GOOD, HIGH ANTIOXIDANT multi (NOT and I repeat NOT something over the counter) Most over the counter vitamins are the MINIMUM your body requires and the bioavailable sources are poor (the ability your body has to absorb the nutrient) THEREFORE.......get something that is optimal levels w/out being toxic and top of the line bioavailable sources. My pick....PHARMANEX. I've been on them for about 16 years. I've gone off them, tried other things and ALWAYS come back. VERY high quality and a first rate company.

Let me know if you have any other questions or concerns. I'd ALSO recommend you visit the MXICORP website. Many people have overcome intestinal problems being on this product. It's phenominal AND tastes FABULOUS!!! Hope that helps.

A feeding tube will NOT foster the body healing itself! Besides......she's so young. Do you want her to have to deal with a tube the rest of her life? Rather, learn to handle it naturally. Her quality of life will be MUCH greater!!

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M.B.

answers from Lima on

I would love to talk to you about a juice that has had success in helping people with Crohn's disease. It is from the rain forest & has been known to help a lot of different problems. It's Mona Vie. You can check it out online at www.monavie.com. It has helped myself & my friends with many different things. I can even give you some to try.

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