Fibroids

Updated on October 14, 2008
J.J. asks from Prague, OK
20 answers

Hello,
I was just told that I have fibroids. One is 10cm the other is 5cm. The treatment plan that I was given is to take Lupron for 3 months to reduce the size and then have a hysterectomy. I am wondering if any one has had to deal with fibroids and what your options were. I have asked to be refered to a specialist to see if there are any other options. Your info will be greatly appreciated. Thank you for your help.

More info. Sorry I didn't mention that I am very anemic and have very heavy monthlys. Also the Dr has given me the depo shot. Which has my montlys to be longer. I asked him about this and it is a side effect of the depo shot.

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So What Happened?

Thank you for all of your advise. At this time I am going to see another GYN and I have been refered to another Dr. who is an endocrinologist.

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L.S.

answers from New Orleans on

I have had Fibroids for years. In fact when I was pregnant with my daughter with is 8 months old the fibroids grew incredibly large, one was the size of a baby's head! The doctors told me as long as I wasn't having any side effects or complications from the fibroids that we would just watch and see. He did put me on the depro vera shot at 6 weeks postpartum to help shrink the fibroids back alittle. I am 39 years old and have had them since my 20's. I would get another opinion if you are not having any problems. A hyterectomy is a serious operation that can sometimes have serious complications and should not be taken lightly.

Good Luck!

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G.F.

answers from Tulsa on

I just had a hysterectomy in April because of fibroids and Endometriosis. Both of which I had known about for over 25 years before I had anything done. They made my periods very painful and also kept me from getting pregnant until I was 38. I was not given anything to take to try and reduce the size of them as I had more than they could count. My only option was the hysterectomy and I am doing great now. My OB/GYN is Rachel Gibbs and she is with the Warren Clinic on 51st between Harvard and Yale. She is phenomenal and I trust her completely. Best of luck...
G. F.

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K.S.

answers from Decatur on

J., I suggest that you get your hormones evaluated with a saliva test (Not blood test) which is more accurate. You may very well just need progesterone and there again I suggest you get natural. There is a website you can check out on a Dr who did research of what happens to women and they may not even have to have hysterectomy. Google Dr john lee. The company that I am affiliated with has a natural progesterone called Prolief that has helped so many women and men in so many ways. If you want more info ck out www.successfromtheheart.myarbonne.com and/or call ###-###-####. Thanks, K.

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M.F.

answers from New Orleans on

You don't say what problems the fibroids are giving you. If they're not bothering you, it might be best to leave well enough alone. If, however, your monthly periods are extremely long with a very heavy flow, you might want to consider the hysterectomy -- a partial, uterus only.

When I was dealing with my fibroids, I remember thinking that I had one good week out of every month that didn't involve my period. The other three weeks were spent anticipating it, going through it and getting over it. After a few episodes of a sneeze causing the floodgates to open while I was at work and realizing that I was always exhausted because I had developed anemia, I decided that it wasn't worth holding on to a uterus that I had retired from childbearing. One important point: because I was over 40 when I had my surgery, my gyne wanted to take the ovaries and fallopian tubes. I advised her to examine them and, if they were in good shape, leave them alone. I did not want to wake up in the recovery room in the middle of a hot flash.

My question is why do they want to subject you to that medication and still do the surgery? Shouldn't it be either--or but not both? I've had a friend who did the medication because once the fibroids had shrunk, the procedure could be done vaginally thereby reducing her recovery time. It did, however, give her all the side effects of menopause and, we think, caused her to go full blown menopausal much sooner than she would have.

Another friend has been so anemic that her doctor is talking about transfusions to get her blood count up. That seems to be higher risk than having the surgery but her doctor is very conservative when it comes to invasive procedures. As if transfusions weren't invasive, eh?

I hope all of the above has been helpful and I wish you the best with whatever you decide.

J.W.

answers from New Orleans on

i just wanted to let you know that you most likely do NOT need a hysterectomy. i had fibroids - and had a procedure called a myoectomy and then went on to get pregnant!!! please feel free to ask me any questions. hysterectomy is what they USED to do when women had fibroids - there are many other options now!!!
take care
J.

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K.L.

answers from Tulsa on

I had some back when I was a teenager but they weren't cancerous or anything like that. But they gradually disappeared. I'm now 40 since last Tuesday I have one right now but my doctor has down ultersounds on me to look at it and its not anything to be alarm about he told me several options that I could do, but he says that alot of women develope these fibroids and that even if you get rid of them that there is chances that thier would be new ones later for some women just produce them. My 14 1/2 year old daughter has developed them also recently and I've gotten an ultersound done on her to keep an eye on them which the doctor is going to put her on the pill to get rid of them. I too was put on the pill at her age to get rid of the ones I had when I was a teenager too! But if you feel you need a second opinion I would do it. I hope you feel better & that you can soon feel at ease! Good Luck, Hugs

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R.D.

answers from Oklahoma City on

If you were not given other options...get a second opinion. The old way of thinking was just to take it all. I took lupron in '95 for one enormous fibroid. I was told repeatedly by different doctors I had to have a hysterectomy but finally found a doctor that would do a myomectomy.

Do some serious research before you agree to the lupron! I would have been more aware if I had educated myself.

Look on the hystersister.com website for great information on hysterectomies and just personal experiences that are helpful.

My suggestion is to just take a deep breath and learn all you can before doing anything so invasive.

Some doctors are very pushy on just getting rid of it all if you are not planning on children, some feel that way even if you want a pregnancy. Find a good doctor, that is open on all the options. One that understands, this is YOUR body and YOUR decision and will help you make an educated decision.

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C.C.

answers from Biloxi on

www.hystersisters.com is a free website with tons of info. I am home recovering from hysterectomy for different reasons & have found the website very useful.

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J.L.

answers from Tulsa on

I had a 6 cm. fibroid. The Gyno had me on the pill trying to help my periods and bleeding- for 3 months - to no avail. Then the pill for 3 more months. Still no relief. All this time he didnt know I had a fibroid. Found out in the ER when I was blacking out and bleeding like kool-aid with clots-- they did a sonogram and found it. He never knew because it was up in the top - bigger part of the uterus and he couldnt tell by the pelvic exam. I think he shoulda done a sonogram way before- but wanted to try the pills. Now- looking back- I think the bc pills made the fibroid grow. Just in time to conveniently need a hysterectomy! Maybe that was his plan all along. I think he had suspicions of me having one. And from what I've read- estrogen makes em grow. Hence the bc pills. Maybe I helped ole doc make a few yacht payments! In case you havent guessed- I had to have the hysterectomy. But, you know- it has been the best thing for me. My quality of life improved 100%. And so has the bedroom scene. I was done having kids- and I have the playpen- but not the crib! So- no more birth control issues. Best of luck to you too.
J.

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C.T.

answers from Little Rock on

I 200% agree with Kathy. Please start doig your research on the natural ways you can help yoursef. Lupron is a very very very nasty drug and causes much more harm than good. You do NOT need a hysterectomy just because of fibroids either. You can keep your uterus. If you have it in you to change your diet to ensure your body is getting the proper nutrients and supplement with natural progesterone then you can shrink the fibroids.

Please do your homework before allowing the doctor to jump into such a harsh medical treatment plan.

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B.L.

answers from Oklahoma City on

J.: Are you through having children or do you still want more?

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K.S.

answers from Fayetteville on

There are several other options, besides hysterectomy, and if my doctor didn't discuss them ALL with me, I would go to another doctor.
http://www.wral.com/lifestyles/healthteam/story/2607777/ This article talks about several options.

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M.M.

answers from Baton Rouge on

Mine have been there for years. They gave me rather painful periods but I survived them. They are not cancerous so I kept them. They don't seem to be doing any serious dancing so we're co-existing still. I'm now near the end of perimenopause. I'd get a second opinion either way because that's some serious invasion.

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N.C.

answers from Fort Smith on

I found out in 2006 that I had fibroids because they were looking for the cause of my anemia. At that time, one was 4.5 cm, the other was 2.5 cm. The largest grew to 6.6 cm during the next year. As of this year, the largest is 7.5 cm. The doctor hasn't paid much attention to the other one. Since June 2006, I have been on the depo birth control shot to try and reduce the size but it seems like a hysterecomy is going to be the only solution. Over the last year it only grew less than one cm. The doctor is not wanting to give me the surgery because of my age. I turned 50 yesterday. I am no longer anemic because I no longer have periods due to the shot. However, some of the side effects of the shot are worse than the pain of the fibriods. At my age, once I hit menopause they should start shrinking because of the decrease in hormones. Hormones cause fibroids to grow. I think your doctor is trying to shrink your fibroids so that you can have a laproscopic surgery instead of the regular huge incision. I've read some of the others advice, which has helped me, and doing more research seems to be in order for both of us.

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D.L.

answers from Tulsa on

You mention being refered to a specialist. A gynecologist is a specialist. A general practioner or an internist should not be recomending surgery. I had a hystorectomy, everyone said there where other options but I just felt so bad. Turned out that there was cancer hiding in my ovary that wasn't evident on my blood work or ultrasounds. If you aren't comfortable with your DR then get another. It is your body, but Even with the cancer, I felt so much better after getting those diseased non funcioning organs out of my body.

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E.L.

answers from Jackson on

Not sure where you are and I am new to MommaSource. I am presently adopting 4 wonderful children (10,9, 5 and 1)! The doctors told me I had fibroids for years but when I had the hysterectomy it was Acherman's Syndrome and I had stage I Adnocarcinoma. I am so glad I had the surgery! I was back to work 10 days later. The hysterectomy has not caused me any problems (except I couldn't have children through birth) but now my dreams and prayers are answered. If you are in MS I used Dr. Gebhart at the Baptist hospital in Jackson MS.

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A.W.

answers from Mobile on

J.,

I don't usually do this but I want to give you my phone #.

I suffered for years and have tried everything known to man to get better.
I was able to beat a hysterectomy and have 2 healthy children (one on the way).

Too much info to type.

If you'd like to give me a call, feel free to.

Many blessings on your journey to health,

A.

###-###-####

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S.M.

answers from Fayetteville on

I would get a second opinion.... If you haven't seen this months (Oct. 2008) Ladies Home Journal go out and buy one it has several pages of info about hysterectomy's and most are unecessary. Here is a link to the article,

http://www.lhj.com/lhj/story.jhtml?storyid=/templatedata/...

if you can't pull it up just go to www.lhj.com and search for Harmful Hysterectomies: What Your Doctor's Not Telling You.
It says each year About 600,000 hysterectomies are performed in this country, and as many as 420,000 of them may be unwarranted! WOW!

Good luck :)
S.

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C.J.

answers from Alexandria on

Hello, I am a 29 year old mother of two. I was told two years ago by my doctor that I have four fibroids. I am not currently on any medication, and my doctor recommended me to have an endometrial ablation surgery, which is an alternate to the hysterectomy. This surgery involves no cutting and is done as an outpatient surgery. I highly reccomend you ask your doctor about that. My husband and I both are glad I decided to have it. I haven't had a period in almost two years. Hope this can help you. I am currently employed full time.

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