Atonic Seisures in Infants

PLEASE stop all vaccinations. DO NOT have your baby receive anymore shots. This is probably directly related to the shots that he has already received. I don't mean to come off so harshly and strongly but you have to do the research here on this. In the meantime there is several sites to go to for help on seizures. I know that UCLA is a great place to start and also www.tacanow.org, a support group and place of information for families of autism, deals a lot with seizures in children and there are resources listed there.

The AAP recommended schedule of shots for children is too many, too soon. Here are sites and books that I always recommend for people to start their research:

www.909shot.org
www.tacanow.org
www.generationrescue.com

The Vaccine Book, by Dr. Robert Sears
What Your Doctor May Not Tell You About Childhood Vaccinations, by Dr. Stephanie Cave
Evidence of Harm, by David Kirby

K.,

First of all I am so sorry this is happening to you. Please make sure you report this to VAERS Vaccine Adverse Events Reporting System if this has happened after the vaccines even if it is past the supposed 10 days. At the same time look into how to detoxify that sweet baby boy. I don't know the best place to go but you could try looking up what is called a DAN (Defeat Autism Now) pediatrician who would know how to detoxify babies after shots. Google "DAN Pediatricians". Otherwise take him to a holistic doctor and do some research yourself. I have heard that Detoxamin (baby version) is helpful. It is an enema used every other day I think. This is all I know for now. Make God your best friend and ask him to show you the answers. There is always a window to turn things around if you act quickly.

C.

My son is 8 and he had small seizures at 4 months. I told the dr. and she said he was just startled. They gradually went away until I had him immunized again. So, for us, it was no more shots and no more dr. We changed our diet and lifestyle and eat Sunrider's whole food herbs. He recently went to a new dr. and all is well, but that wasn't the case before we changed. Following the last shots he had severe leg pains and the medical field offered us no help. They just said to give him advil. No matter the outcome, it is a good idea to watch what you eat and feed your children and become active in their health. You are responsible for them and will live with them throughout their lives. A dr. is not connected to and has no long term consequences in regards to their health.

My brother started getting drop seizures after his 6 months shots. I would also 2nd the idea of stopping all shots. This was 18 years ago and not knowing any better my mom continued shots and the seizures got worse after every set of vaccines he got. It's hard to look back and see the progression and see where it came from but no one giving us any insight that it could be the vaccines. I hope that your son will grow out of them. I have heard of other children of small age loosing them after certain diets and supplements. I hope it can be something simple like that. My brother is on medication for the rest of his life that is very hard on his liver. Good luck to you.

If this did happen within weeks of his shots please report it to VAERS. This is the vaccine injury reporting system. Then I would go for compensation if you have to pay for his medical bills if these continue because of the shots. There is a statue of limitation.

Good luck to you.

My sister in law in a neurologist at Loma Linda University hospital. She has been in this field a long time and I will foward your information to her and see what she has to say right away. She's great at getting back to me quickly. I'll be in touch with any info.
M.

this is a big deal, and get on it asap. contact the epilepsy alliance of oc, located in costa mesa. my son started having drop attacks 2 years ago when he was 2 1/2. His seizures are generalized, and we are unable to find a med that controls them.
please get up online to yahoo groups for infantile spasms. It is a great community made up of informed parents. Don't panic, just get on the ball. get a neuro asap at choc or ucla. get informed. contact me if you need to, I will be glad to do what I can. I live in Irvine.

Hi, K.. My son started having seizures when he was small (pedi-mal, grand mal, absence...). It was scary.
Make sure you get good referrals for a pediatric neurologist. If you know nurses or doctors, ask them too. Ask a lot of questions.
My son's pediatric neurologist is amazing and very responsive. If there was something I didn't understand or that I read, I'd call him or even run it past my son's regular doctor if we happened to be there. I've even asked questions of my neurologist and have learned some amazing things.
The EEGs are easy. The medications were trickier for us.
We had a very difficult time finding a medication that worked and that my son didn't react to. He's now on two medications for the different seizures and has been doing extremely well. He has blood draws every 6 months for the medication, and 3-6 month follow ups with the doctor, which he enjoys. He even looks forward to the EEGs. :-)
If I can offer you experience, encouragement and support or if you just need to vent or chat, please feel free to email me.
Hang in there and best of luck. We'll be praying for you.

Hello, K.,

I just noticed someone mentioned Sunrider. Excellent! They have been in this country for 27 years now and many have never heard of these wonderful regenerative foods.

I am thinking of one product in particular to have on hand the next time you experience a seizure. A simple foundation of these foods can regenerate his body.

We have an amazing midwife on our team who has worked with these foods for over twenty years. She's delivered over 3500 babies.

Please let me know if you would like to learn more. And, don't worry, dear soul.

My very best,

T.

www.myliveearth.net/T.

You might think this is crazy but I am going to send you to a site that sells biomagnets. It post testimonials and I remembered reading one on epilepsy. I've read posting of people using magnets on infants with good results for other ailments. The best thing, you can't possibly hurt your son by trying it. I have been using magnet therapy for years and felt like I really hit the jackpot when I came across this site. These are the best. The folks that run the site are very nice and will be able to guide you. The book for $15 is worth the money.
http://www.biomagscience.net/magnet-therapy/seizures-stop...

Personally, I have used magnets for migraines, back pain, bronchitis. My husband uses them occasionally for carpal tunnel. I recently started using the magnetized water.

It is very scary, but just take a deep breath. Don't worry, you'll get through this.

Hi K.,
I wanted to write you about this type of drop attack or seizure, as my daughter has this type and grand mal and has since she was an infant. First, since you don't know wait to see the neurologist before you are too frightened, it may not be drop attacks. I will tell you since my daughter has been through the EEG that it is totally painless, but they do give them sedation by oral medication, and it is yucky tasting!! They will tell you to bring your son in when he is sleepy and then try to get him to sleep. This part was easier for my daughter when she was a baby but now we can't get her to do this. Anyway, they hook up little sensors all over their heads while they sleep and watch the electrical brain activity. Sometimes the EEG will come back with something and sometimes not. My daughter has had grand mal seizures every two hours while not on medication and a clear EEG. Others will have EEG's that show activity and not have any noticable seizure or only have them very occasionally. The test isn't always going to tell you an accurate picture of what is going on, and it is important to know that.
My daughter has drop and grand mal not at the same time, but what her neurologist said is that the fall is the worst part of the drop attack. So, if medicine doesn't work sometimes those patients will need to wear a helmet so they don't hurt themselves severely.
I am not trying to worry you at all. There are medications that they should be able to try if he does have them. My daughter so far has been seizure free since on her meds, I totally understand your concern with this if you need to talk further feel free to PM me.
K. P.

How long will it take for your insurance referral? I think you should fast track that process. I'm not trying to freak you out more than you already are, but our Ped has always told me not to mess around w/seizures in infants (specifically infantile seizures). It's so hard to know which one it is...

Don't wait around for insurance, be proactive in pushing it through the "referral" system!

Good luck to you and baby, please provide an update!

K.,
It is so scary-- My son had a seizure-- he was older, though, and it is a very confusing and frightening time. My best advice is to go to www.epilepsyfoundation.org. ###-###-#### It is located in San Diego. They are an amazing organization designed to give accurate information, help and support to families who face this. There are so many kinds of seizures, that the internet will only confuse and scare you. My son was eventually thought to have a one-time only nocturnal seizure, but wasn't diagnosed like that for 2 years. I could have never found this on the internet. The EEG is painless, although a big hassle (you can email if you want more info), so be gentle with yourself and find out as much ACCURATE info that you can. There are some of the top neurologists at SD RADY Children's, so you are in good hands. All the best-
S.