Any Other Moms Out There with a Pediatric Stroke Victim?

I do not have a child with your son's condition. However, in your letter the words "I feel like it is my fault" jumped out at me. What purpose does it serve to blame anyone for what is?
Please do NOT place blame on yourself or anyone else. It does not help the situation in any way. All blame does is make you feel guilty. We are all our own worst judge. Instead, cherish each day you have, move forward. The past is history, the future a mystery, and this moment is a gift. That is why it is called the present. Please love yourself, lose the blame and guilt. Peace and love to you C.!

Dear C.,
I have not been through what you have with your son but my son was diganosed with Asperger Syndrome when he was 4 and I completely understand about how you feel. I blame myself for my son's disability even though doctor's can not say what causes Autism. I was also worried about having my second son because it tends to run in boys. I can say I will always wonder but I have to focus on my children and their well being. Don't beat yourself up about how it happen. Just be the best mom you can be. Stay strong.

E.

First, talk to your son's doctor. They should be able to reassure you. Or ask them if there are any resources like a support group or if they know of any other patient whose parents would be open to meeting and talking over coffee.
Good luck,
K.

Hi C.,

Although our cases sound a little different, my daughter too had a "stroke" at 8.5 months of age. She was diagnosed with an extremely rare condition called hemorragic/hypovolimic shock encephalopathy syndrome. She turns 3 in April.

I imagine that we have a lot of the same challenges. My daughter has a website with her details if you are intersted.... HomePage URL: http://www.liveforthechallenge.com/challengers/Jayda-Gould

Basically, our biggest challenges include intractable seizures and motor issues. Jayda is in a wheelchair but does have some movement. Her legs work fairly well and she can sit with assistance (decent head control) but arm movement is minimal.

Please feel free to email me directly. It is nice to know there is someone else that can relate. I am also involved in a moms group for moms of special needs kiddos. Let's chat!

K.