Support Groups for Parents of Children Going Through Open Heart Surgey

K.,

That has to be scary for you and your family. I would gladly listen if you need someone. I am sure that their is a support group through the hospital or Ronald McDonald House. I have watched my cousins go through heart surgery. So, if you need someone please don't hesitate to contact me.

I will keep you in my prayers.
A.

My husband is an adult cardiac surgeon and works closely with the surgeons at Omaha Children's Hospital. He has nothing but good things to say about them. I do anesthesia and if you have any questions or concerns related to the surgery/anesthesia I would be happy to correspond with you. Email is best for me.
____@____.com
Take care and best of luck,
A.

K.,
I just want you to know that you are in my prayers. If you need anything feel free to email me at ____@____.com. I just want you to know that I have a 4 year old that went through with open heart at 1 years old. We found out that she had a hole in her heart when I was pregant with her the one that made it, and her sister (the one that didn't make it). After I had her we kept going to the heart doctor to monitor how it was doing, they didn't want to do open heart till she was out of the rsv season, but they were going to try to advoid that and go a differnt way, but was not able to due to the fact her vales were to big. So they ended up opening her chest and fixing it with a patch big enough so when she gets old or when she is in her teenage years she will have to go and have another done. She is a healthy 4 year old and is doing great. So it is okkay to be scared, but you must be strong and brave at the same time. Take Care hope to hear from you soonn
M.

my daughter has a heart defect, an ASD, which they think might need to be closed, but for now are just watching closely. I dont know why your's needs surgery, but I will be happy to chat with you. If mine needs surgery, she will be having it angoplasty style instead of open heart. WebMD.com has great resources on heart problems plus sites that have chat groups like this one, but only with parents who have children with heart problems. I am not part of one myself, but I know they are on there. Good Luck!

hi , my name is R. . i live a little bit south of omaha . i'm a soon to be 54 y.o. wife and mother . i have 4 children , my youngest of the 4 is a 16 1/2 y.o. son . he was born w/ a heart defect. the heart defect is " vsd/ps " = ventricular septal defect . all of the surgeries he needed as done here at omaha childrens hospital . his 1st surg. was at app. 18 months old , his last was at app. 13 y.o. . over all he is a healthy young man ( husky and tall !!! ) he has always tired out easier than his peers , but hangs in there . if you need someone to talk to , etc. i'm an e-mail away from you ( if i recall correctly there is a support group , i think it is a neb. wide group. i've often thought about getting involved in it , but for 1 reason or another i haven't . i have the info somewheres here in my house ~~~ " oh , where , oh where can it be ... " i'll try to make a point of finding it and getting back to you w/ the info ( 1: childrens hosp. / the cardiologist office should have it also and 2: i might need a gentle reminder or 2 to get this task achieved for you , sadly to say sometimes i lack in the motivation area big time )~~~ when in april is your daughters b'day , my 16 1/2 y.o. son that i've mentioned in the e-mail b'day is april 10th

i'm not sure of any support groups buy my sister was diagnosed with supraventricula trachicardia when she was 3 and she has been on meds since but is getting heart surgery next week. she's 16 now. so i do have an idea of the situation you are in if you want to talk or vent you can send me a note. ____@____.com