A.,
That GI MD should be reported. Find a new one in your area, get the medical records from the current one and find someone that can help. I believe it is baloney when a doctor, a man who is supposed to help improve the quality of your life, doesn't do what he can to help a small child. Telling you that it is something she will have to live with is wrong!! There are some good doctors out there, you just have to keep looking.
I know what I am talking about. My husband had 3 stroked 4 years ago. We found out later that he had blockages to his brain and only had 15% blood flow and the neurologist told me to take him home that he could go back to work in 3 weeks. Luckily he did not have any paralysis. My husband got steadily worse and his internist and I were not happy with what we were told. We got all medical records from the hospital and then we started calling around to the area neurologists until we found one that said he could help him. WEll, my husband is alive today due to that doctor. By the time they got him into surgery, the constriction was 8% and he would not have lasted another week.
I know my husbands problem is nothing like your daughters, but my point is that you have to keep looking until you find someone to help her. Telling you that she will have to 'live with it' is the worst thing a doctor can say to a parent. Please keep trying to find another doctor. Unfortunatley every doctor is different and it all depends on how they keep up with the new procedures and techniques that come out all the time.
I wish you good luck with your daughter and hope you find someone who can help her soon.
E.