My daughter had Neonatal Alloimmune Thrombocytopenia (NAIT) at birth (a surprise to us) and spent a week in the hospital to get her blood platletes up to an acceptable level. She has been just fine since then and is now 15 months old. We are now considering having another child and have met with Dr. Schwartz at Midwest Perinatal Associates. He ran some blood work and found out that if we get pregnant again I will need to have IVIG treatments from 20 weeks through the end of the pregnancy to lower the risk of complications for a second child having NAIT.
My understanding is that the treatments include either twice a week IVs (lasting 6 hours!) or IVs once a week and prednisone daily.
Does anyone have any information about Dr. Schwartz and/or been through this treatment?
I work for a home health agency, you might be able to get a home health nurse to do your IV therapy at home.
C.,
SInce I was 16 years old, I have been getting IVIG treatments. They are painless, and normally go smoothly. They help so much and to have the prednisone onboard too helps ALOT!
I have ITP, and at this time, so does my daughter. She is only 6 months. We are going tin in a few weeks to find out her line of treatment. But it helps imensely. You feel like a new person after you get the IV honestly. A little groogy immediately following, but the next day you should see a difference.
I do not know much about allo- types of illnesses. But if you really want another child, I say go for it. Do the treatments and see if that helps. If you ahve any qeustions or concerns, just send me a message :)
A.
I have been through this... and check out the yahoo chat group called NAIT... This is a VERY SERIOUS condition but treatments are available!!!! Please visit the chat group if you want some more answers!
I don't know anything about that condition or treatment, but I saw Dr. Schwartz, and the other 3 docs at Midwest Perinatal regularly during my pregnancy (in the hospital, and weekly in their office) and was very confident in their abilities. He actually saw something in an ultrasound that was concerning that led to me being in the hospital for 2 weeks and then on bed rest for last month of my twin pregnancy, and I think my own OB felt they might have been a bit on the more cautious side once the problem improved, but I was very happy to know that they were taking the "better safe than sorry" route. Nothing but good things to say about them!
Dr Schwartz and Assoc were my perinatologists when I was pregnant last year. They did a great job watching me and I had monthly sonograms. I was 35 so I was labeled "advanced maternal age" hence the reason for the perinatologist. I don't know anything about NAIT, but when I ended up in the hospital for observation, one of the perinatologists (they work as a team, you never know who you are going to get) was there every day to monitor me and they made the decision to take the baby early since he wasn't getting proper blood flow through the placenta. I felt fine, so it's a good thing they were watching because we never would have known Taylor wasn't getting the proper nutrients to grow. He was born 10.5 weeks early and he's 7 months old nowand healthy!!!
