I have a daughter who has been dealing with anxiety for years (she is almost 9 now). We finally just put a label on it this year. For the last 2 yrs, during school months, she has run a low grade fever for months at a time. We finally realized that her body is so out of whack from anxiety that it just runs a fever continually at times. She is now seeing a psychologist to help her find some coping mechanisms. Her teacher has been AWESOME in working with her at school. She has given her accommodations without an IEP. We are hoping that she will gain the strategies she needs and be able to cope on her own next year. If not, our next step is to have her get the IEP. Right now her accommodations are related to test taking. She gets them read orally to her if she fails them written (b/c of anxiety, she often gets an F written and a 100 orally).
I am glad that the school saw the signs in your son and was willing to help him so early. I have had to ask for school counseling every year for my daughter; and no one has ever mentioned doing an IEP, until this year when she got a teacher who really cares about her. I think your son will really benefit from a specialized plan of action to help his specific needs.
Good luck with everything, and I'm sorry about the loss he has experienced. That is so devastating to a little guy like that. My daughter almost lost me when she was 3, and she never recovered emotionally (I was diagnosed with a brain tumor, had brain surgery, and did a year of chemo... all starting 2 days after having her little brother. Her life was turned upside down, and for years she thought you had to have brain surgery and be sick to have a baby.). Anyway, I know kind of what your son is going through. He could benefit tremendously from getting the help he needs at school (and outside psycho-therapy if that's possible). Again, I wish you luck with all of this!