Hi A.,
I just wanted to say that I feel your pain! Last year my boys both had RSV (at the time they were about 2 years old and 6 months old) and it was a long, rough recovery. My little one had lingering wheezing after having RSV diagnosed in late February until some time in May. For the first several months, I slept little, gave him nebulizers every 4 hours (around the clock), had mucous vomitted up on me every night, and he refused solid foods (he nursed exclusively until closer to 8 months). We co-slept a lot to keep everyone as rested as possible. I'm a light sleeper, so I layered soft towells or doubled-up receiving blankets under our upper bodies and slept with his head curled on my shoulder so he could breathe better. If I just couldn't sleep with him, I kept the top of his bed propped (by propping the feet a bit), but nothing really helped. I missed several weeks of work because he would not even take breast milk in a bottle. My husband has asthma, and once the wheezing was mostly under control we did end up seeing a pediatric pulmonologist and he was finally diagnosed with childhood asthma. Because of the risk of lung infections, he did have a few ear infections treated right away, too. I wish this sounded more encouraging, but it has been a year and he is mostly doing well, just has a tendency to wheeze when he gets a cold and we are on maintenance medications for the asthma and do follow-ups every four months or so with the specialists. I would talk to my doctor if his weight is becoming a concern, but he probably just needs to comfort from nursing and is probably getting enough that way for now. My little guy hung on to that past a year, too. The rash could be something new--when my kids have a severe eczema break-out it looks pretty bad. I would just keep running a vaporizer/humidifier at night (changing the water every day), keep the top of his bed propped a few inches, and nurse on demand.