Niece Recently Diagnosed with Autism

Updated on September 10, 2008
H.S. asks from San Diego, CA
48 answers

My niece was recently diagnosed with Autism. She started having problems the day after getting eight shots, but the doctors kept telling my sister that she was overreacting to small symptoms. It took my sister five different doctors and 19 visits for someone to finaly give her an answer. Unfortunatley, now that she has the answer my sister is very scared. Are there any books that someone could recomend conserning Autism? I realy want to be able to help her, but I don't even know were to start. I have worded with Autistic children before but only for a few weeks and I am pretty sure that I do not remember a lot of that considering it was more than a decade ago.

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So What Happened?

Thank you all so much for all the information! After my 5 year old niece was expelled from school for throwing a pair of scissors, my sister quit her job as a dental assistant in order to home school her. My sister says there have been fewer "attacks" since she took her out of all of those loud environments. They have their first appointment with an autism specialist on Friday, and she is planning to get a therapy dog as well.
Thank you for making this a little bit easier to handle.

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J.M.

answers from Los Angeles on

There is a lot of information out there

#1) Get support from knowledgeable parents

www.autism-society.org
click to Find a Chapter near you

www.tacanow.org
Get in the e-group: autisminterventionsocal on Yahoo

Best Book: Facing Autism, Lynn Hamilton

Tell her to go to a Defeat Autism Now! conference and find a DAN! medical doctor.
http://www.autism.com/dan/index.htm
and look over the info on the ARI site:
www.autism.com

ESPECIALLY due to the shot reactions, the above is essential!!!! My son made dramatic improvements with biomed treatment, mainstream medicine docs did not help.

And have her do LOTS of reading because it is parents who will find the answers, not her regular doctors.

ALSO:
www.feat.org
www.lafeat.org
www.lovaas.com

AND
CARD - Center for Autism and Related Disorders

If she is in CA, yes she should call the Regional Center for intake, and call Special Ed department of school district for evals, BUT do not rely on what they say for services. They often do not want to provide the services due to limited dollars. Get independent evals. See parent groups for referrals.

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S.A.

answers from Los Angeles on

Hi H.;

I am the proud mother of a child who i feel was autistic after his vaccines. He is now 11 and very high functioning due to my assertive intervention. I have the highest respect for a book by Dr, William Shaw, PHD "Biologival treatments for Autism and PDD" from the Great Plains Laboratory in Kansas. It made a huge difference in the choices I made to help my son overcome the many health challenges that came with autism.

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K.T.

answers from Los Angeles on

Try getting the book Autism Heroes. It's a new one that has a llot of uplifting stories about families dealing with autism. Alos, I would suggest she sign up with her local regional center ASAP. They can offer a lot of assistance, and nearly always have a support group for parents of newly diagnosed kids.

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S.D.

answers from Los Angeles on

A mom that I know wrote this book: Autism Spectrum Disorders from A to Z. It is packed full of information. Now that 1 in 150 children are being diagnosed with Autism, I'm learning about it too. My son is not displaying any signs, but I just want to be better informed. I'm reading Jenny McCarthy's book Louder Than Words right now (I got it from the library).

Here's the link to the book, I think it's very sweet of you to educate yourself and be a support person for her. What area does she live in? The mom that wrote this book also has an organization I could try to get more information about, or it's probably in the book too.

http://www.amazon.com/Autism-Spectrum-Disorders-Assessmen...

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J.V.

answers from Los Angeles on

Hi H., I am a mother of a 12 year old and Marine wife (retired).

Thanks for sharing your post. I have worked with individuals with autism for over 8 years now and have written two books introducing typical peers to the challenges of autism. If you are looking for reading material, I would suggest three publishers (the top of which is my publisher) because almost all of their literature is autism related:

AUTISM ASPERGER PUBLISHING COMPANY www.Asperger.net
JESSICA KINGSLEY PUBLISHER www.JKP.COM
FUTURE HORIZONS http://www.futurehorizons-autism.com/

I have worked a lot with kids and adults with autism and would be happy to communicate with you personally if you have any questions or concerns. However, I specialize from the interaction and awareness side of autism versus the medication and parental paperwork side. So depending on what you are looking for, would determine if I would be of help.

I do highly recommend you and or your sister get hooked up online also. I have recently joined WWW.FOGGYROCK.COM which is an internet site devoted to families, friends, and those interested in autism...of course it also includes individuals with autism in the discussion. I think your sister would gain some immediate friends and understanding...and answers if she joins there. It is free and they are welcoming.

Also, check out www.Autism-Society.org for Autism Society of America.
J. K-V
www.AisForAutism.net

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C.C.

answers from Reno on

http://www.rainweb.org/

This is a local organization that knows a lot about Autism. Both of the founders have children with Autism. There is such a wide spectrum with Autism that I doubt any book will meet her needs but she does need to talk to other parents who are dealing with this diagnosis and parents who have been living with it for years. There is a PDF she can download on this site that is full of useful information and local information as well. Autism 10 years ago is nothing like Autism now so even if you could remember any of it...it probably wouldn't even matter. Best wishes to you all. This isn't an easy diagnosis to accept but there is a lot she can do for your niece and the sooner the better.

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M.M.

answers from Los Angeles on

Here in So Cal we have a great group called TACA which stands for Talk About Curing Autism the website is TACANOW.org. There is so much information there and they have group meetings once a month depending on where you live, all of that is on the website. If you attend a meeting you can receive a free manual produced by the organization that basically contains everything you need to help you in the Autism journey. They are so helpful and my friends and I in the Autism community have found this group instrumental to getting us on the right path to wellness for our children. For your sister: Do not be afraid be proactive. You will find a world of support through TACA.

A little about me:

I am a mom of a 14 year old boy with Aspergers Syndrome which is an autism spectrum disorder. I have struggled long and hard to get the proper services and healthcare for my son. This year I had a shift in my thinking and decided I wanted my son's autism to be a blessing. Ever since that moment my son's recovery has exploded. I realized that I need to stay thankful and proactive for my child to recover and fully thrive. My thoughts and prayers are with you.

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K.S.

answers from Los Angeles on

I have a 10-year old son who is autistic. A beautiful book called Autism Heroes by Barbara Firestone. It is an inspiring book of interviews with families who have been effected by autism. It gives hope to other families. It can be purchased either through amazon.com or the publisher, jessicakingsley.com. There is also a website for the book at autismheroes.com. There are many other books dependent on what you want to know about autism - many of those books can be found at jessicakingsley.com. However, if you or your sister have more specific questions, please let me know. There is a lot of information at autismspeaks.org.
Best wishes, K. S.

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J.H.

answers from Los Angeles on

Read the book Louder than Words: A Mother's Journey in Healing Autism by Jenny McCarthy. Another source of good information is on the www.ultrawellness.com website, but you'll have search for blogs written about it. Find as much "natural healing" information as you can. Many kids with autism get leaky gut syndrom and many cannot tolerate gluten products. Jenny's book will give you lots of good info and other resources to get the info you need.

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S.C.

answers from San Diego on

I am the mother of a 6 year old boy with autism. I really like Chantal Sicile-Kira's book "Autism Spectrum Disorders." She gives a good overview of the treatments and challenges. Best of all, she gives practical advice for parents. When my son was first diagnosed. I carried quotes from the book with me to give me strength.

The San Diego chapter of the autism Society of America has a lot of great information and offers support groups - www.sd-autism.org/ Autism Speaks - www.autismspeaks.org/ - has good information too, but I would strongly advice that you and your sister NOT watch "Autism Everyday," a documentary that paints an overly grim picture of autism, in my opinion. The Nick News and MTV specials on autism are much better at showing the challenges and the joys of autism. CNN is dedicating Wednesday to reports about autism, which may be helpful.

My best advice is twofold. First - families need to follow two tracks, one of pushing to get the best treatments and setting the highest expectations possible for their child and the other accepting and loving their autistic child for who they are. People with autism, be it severe, moderate or mild, are extraordinary people with great gifts for the world (there is a blog called Joy of Autism you may want to check out too.) My second piece of advice is to recognize that there is no one cause of autism and no one course of treatment/education for autism. But there are many proponents of many theories that will tell you they have the one answer. Autism is complex and you need to try different things to need the unique needs and strengths of each person. It's scary because so much is unknown at this point. But every day we learn more.

It is not the easiest thing to do, but raising a child with autism can yield a rewarding life. Your sister sounds as though she will do well because she was smart enough to fight for a proper diagnosis. One thing you can do as her sister is to remind her what a great job she's doing and how brave and loving she is. My sister does this for me and it is the greatest gift she can give me.

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L.P.

answers from Santa Barbara on

My best friend's son has Asperger's, which is on the spectrum. The Autism Source Book was an essential tool for my friend when learning to navigate the bureaucracy of insurance, social assistance and schools. Although their son was entitled to help, it was difficult to get. The book showed them how to muddle through the system and get the help that their son needed. There may be a local chapter of Autism Society wherever you live. They can supply much needed information and support. My friend's son benefited greatly from the services he received. The world was opened to him and he is thriving today. He is an amazing child and we rejoice in him exactly as he is. Life with Autism/Aspergers is a different life than expected to be sure, but it is a very good one. I wish you and your family the best of luck. Your sister is fortunate to have a sister that is so involved and supportive. God Bless!

L. P

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M.L.

answers from Los Angeles on

Check Oprah.com, she did a very good show w/ Holly Robinson-Peete and Jenny McCarthy, both have autistic boys and a doctor who has 2 autistic boys too. It was very informative. I watched the show so that I will be knowledgeable about autism. At that time my son was only one yr old and I needed to be aware of the symtoms of autism. Also, there is a lot of websites that you can check now since autism is very wide spread. I would also suggest buying Jenny McCarthy's book since she was able to find out what works best for her son. Good luck and I'll pray for your niece.
Best, Mom in Sherman Oaks

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O.H.

answers from Las Vegas on

Dear H.,

Please watch this video : http://v.mercola.com/blogs/public_blog/Origins-of-Autism-...

Dr. Haley is making case for the toxicity of mercury and autism. One way to find out for sure is to have a hair analysis then do a metals detox. Please let me know if you would like to find out more this.

God bless,
O.

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L.A.

answers from Las Vegas on

Call the Lili Claire Foundation. They are amazing and will help her immensely.

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M.P.

answers from Los Angeles on

Hello H.,
My prayers are with you and your family. CNN is having an all day program dedicated to Autism on Wednesday. Lots of information will be shared. Just like other people have recommended have your sister call her local Regional Center.

The company that I work for (Discovery Toys) is currently working on building the WORLD’S LARGEST PUZZLE FOR AUTISM AWARENESS. Celebrities Against Autism, along with primary sponsors Discovery Toys and Flagstar Bank, has embarked on a mission to assemble the World’s Largest Puzzle to build global awareness and acceptance for children with autism. Everyone, from individuals to families to community groups to corporations, can participate in the record-breaking endeavor by purchasing puzzle pieces for a $1.00 donation per piece. As the donations are collected, the pieces will be added to the World’s Largest Puzzle, with over a million pieces, gradually revealing an original image that will keep everyone guessing until the very end. The funds raised will be used to generate media exposure for Autism and to support families in need with children with Autism. Discovery Toys is one of only four overall sponsors and the only children’s products company. Discovery Toys is also the only sponsor with both nationwide and continent-wide reach. H. please pass this information to anyone you know and tell your sister that there is lots of help to assist families with Autistic children and that she is not alone. Here are some websites that might help.
www.celebritiesagainstautism.
www.discoverytoyslink.com/mariapacheco
Thanks for your support
M. Pacheco

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S.E.

answers from Los Angeles on

The best advice I can give is to get early intervention services started ASAP. My son was diagnosed at 24 months with autism. Since the beginning he has had at least 35 hours a week of in-home ABA (applied behavior analysis) therapy with a wonderful company called CARD (center for autism and related disorders) Now he is 8 years old and is in a regular 2nd grade class and is functioning like any typical 8 year old. Your local regional center will fund services for this therapy. You can look up CARD on the web www.centerforautism.com
I would also recommend removing dairy and gluten from her diet. These are often difficult for many autistic children to digest properly and may cause severity in autistic behaviors such as self stims, etc.
best of luck
S.

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S.W.

answers from Los Angeles on

Try the Lovvas Center for Early Intervention (by UCLA). They are great. I refer to them all the time and people are happy there. They have great resources and are helpful. Hope this helps. Also...depending on her age, look into neurofeedback (if she is at least eight). Great things are happening for Autism.

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A.N.

answers from San Diego on

How old is she?

Please don't worry, reassure your sister, there is lot of support and she will now get that and learn / know what to do ... now that finally she has more info

Try not to be too angry about the shots - it's connected, but theres no way you can go back now. Everything for a reason.

What kind of difficulties does she have?
There are many types and levels of autism, and changes can still occur.

try to help your sister remember above all else that her child is still an individual.

Blessings

A.

;0)

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M.C.

answers from Los Angeles on

My son does not have Autism, but I have been inspired by Jenny McCarthy's book "Louder Than Words" to be active in learning more and doing something to raise awareness as well as money for research. Here's a web site that might be of interest: www.autismspeaks.org

Mothers of children with autism are so busy caring for their children and working to help them improve. I feel like it's the responsibility of the rest of us mothers to carry the torch FOR them. So glad you came along to ask this question on the behalf of your niece. Your love and support means so much to her. I hope you get some good answers!

All the best,
M.

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J.C.

answers from Los Angeles on

Hi,
I have worked extensively with autism in a developmental setting. I would suggest "The child with special needs" by stanley greenspan(a well respected DIR doctor who has written and worked a ton with autism spectrum disorders) Also- "Sonrise" by Bears kaufmann is extremely inspiring for families who feel hopeless in the face of an overwhelming diagnosis. Once you are looped in with those books(on amazon perhaps)many more in the same vein should pop up. Lots of love for your family-I hope your sister finds the intervention that is best for her little one!! J.

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M.G.

answers from Los Angeles on

A great support group to help your sister learn about what can help her child is Talk About Curing Autism: www.tacanow.org

The website is fantastic for researching treatments and for finding the titles of helpful books on the subject.

I run the San Fernando Valley chapter of TACA and there are other TACA chapters across the US. If she can get to a TACA meeting, she will be given a book called "New Parent Journey Guide" for free. This book is what I wish was available when my son was diagnosed 8 years ago.

There is hope. Autism Is Treatable.

M.

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P.P.

answers from Los Angeles on

Hi H., many parents that have children with any disabilities are not aware of the resources available to them. It is IMPORTANT to get help right away. What ever therapy it takes, speech...etc. Not just any help, but intense one on one help. It's not easy because the school districts will fight not to pay for this. A friend has a little boy with autism and she has had an in house therapist come to the house every day for about 7 hrs. She borrowed money from her parents and hired a good attorney. Fought the school district and got them to pay for the care at home and pay back the attorney fees. The difference in that little boy is amazing. He is so loving and non-violent (as so many kids with autism are). Can communicate really well. They put him in a private preschool this year (being shadowed by the therapist) and he has done wonderfully. In fact, the therapist has now backed off a little and has not had to be right there with him. He's even made a friend. The district wanted to put him in a special education classroom and the parents have fought to have them pay for him to stay at the private preschool because he is doing so well.
I used to work with severe handicap preschooler and kindergarten in a public school. Though we tried as hard as we could to work with these kids, it still wasn't the same as one on one. The therapist that would come in would work with everyone and only spend a short while. Many kids just fall through the cracks. Mind you public school special education programs are still better than doing nothing at all. Really research all your options. Don't settle for what the school district wants to offer. Get an attorney and fight. Know your rights as parents and family members. Learn the law regarding people with disabilities and their rights. Good luck. Oh, one more thing also check into holistic doctor care and healthy eating. There are many natural things one can do to help the child and some symptoms.
I hope this helps a little. But, I'm a big advocate for getting the child as much help as possible, because they can and deserve to live the best life possible, no matter what disability they have.

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M.N.

answers from Los Angeles on

Dr. Greenspan has some very good books. I don't recall the names off hand. but she can try googling them. I would also recommend she contact her local Regional Center here is the link for the Ca directory of Regional Centers http://www.dds.ca.gov/RC/RCList.cfm
They provide many services such as in home behavioral, Occupational therapies (sensory integration), equestrian therapies, respite care services (so mom can take care of herself too), educational advocacy and much much more.
The best sources online are NIMH (National Institute of Mental Health), http://www.autism-resources.com/links/index.html
http://www.autismspeaks.org/
I also recommend using caution with "cures" out there. I have worked with many autistic children. Never have I seen one cured. Some of the behaviors and sleep helped by certain diets, checking for food allergies, etc. But not cured. I do recommend she rule out food allergies simply because it is an easy blood test and its always best to rule out any medical causes.
Good luck with trying to link it to the shots. My cousin is 36 (2 years my senior) and needs 24 hour care. He cannot walk, cannot talk, cannot crawl. He can bounce when he is hungry and you ask him. That is the most communication they have gotten out of him.
He was about 1yrs old and got the DTP or DPT (same shot, order changed) and had a massive seizure within 24 hours of the shot. The courts did not rule in my aunts favor. Its a sad thing, I wish the best for your sister!

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A.I.

answers from Los Angeles on

Check out firstsigns.org to start. Good luck!

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G.W.

answers from Los Angeles on

There are thousands and thousands of parents with children who have autism, and, I believe, the best support you can give your niece is to encourage her to hook-up with these parents for information, resources, and support.

At the Heimberg Law Group website (www.heimberglaw.com) is The Guide: Resources for the Disabilities Community (click on button on left side of the page to get to The Guide). It lists some of these organizations and you can click through to their websites. If they are national organizations, they will list local chapters somewhere on their website. Also, check out the "links." These will direct you to other organizations who are specifically working with or involved with autism.

Best -
G.

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T.

answers from Las Vegas on

H.,

Where is your sister located? I'm in Las Vegas. How old is your niece? The first thing she should do is (assuming she's in the U.S. and your niece is less than 3 y.o.) is call Early Intervention. Here you can yahoo yellowpage search for "Nevada Early Intervention" and get the phone number. They will evaluate her daughter for free, if she needs services, they will provide those for free. If she's not in Las Vegas, there should be a similar service where she's at. She could get the number from her pediatrician or her local school district. If her daughter is over 3, she should contact the school district for more info. Here EI handles birth to age 3 and the school district takes over services when the child turns 3.

My 4.5 year old son has autism so I've been on this path for quite a while. We did EI and we are currently with the school district for services. If you or your sister wants to contact me directly, my email is ____@____.com. I'd be happy to help in any way I can. It can be a lonely, scary road and other parents are the best source of information you'll find. What services are available, what she should access and that type of thing really depends on what problems her daughter is having. Autism can present itself very differently from child to child.

In addition to EI and the school district, we've also used some private services (speech therapy, occupational therapy, autism tutor, etc...). We are also working with a DAN! (defeat autism now!) doctor and looking at different biomedical intervention options. Lots of options and it is pretty confusing! I'd be happy to share my experiences and knowledge if it would help.

T.

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D.C.

answers from Las Vegas on

Hope this Helps! The Idea of Whole Food Nutrition

Whole food nutrition can help ADHD, according to an expert in this area, Dr. Pam Popper:

Pam completed her Masters Thesis in “Nutrition & ADHD” and her PhD Dissertation in “Nutrition & HIV/AIDS”. She is the creator of numerous nutrition and lifestyle programs approved by several medical associations for continuing education units.

Pam is author of several books and cookbooks. She is also a sought after speaker across the United States, Canada, Europe and the Far East.

Here is some* of what Pam has to say about nutrition and ADHD:

There is much debate as to whether or not nutrition plays a part in the development and/or treatment of an ADHD child, with many allopathic practitioners insisting that ADHD is a biological condition requiring the use of medication for its control. This is not surprising. The medical profession as a whole has been very slow in acknowledging the relationship between nutrition and other disease states like cancer, heart disease, diabetes and stroke.

Nutritional causes of ADHD are difficult to prove because there are so many variables. No one substance causes ADHD symptoms in most kids all the time. Part of the problem is the difficulty in testing methodologies for treatments other than medication. Most physicians rely on the results of double blind studies to substantiate treatment methods. But it is difficult, if not impossible, to do a double-blind study on many alternative treatments, including nutrition. I believe that many of the studies that have been done refuting the effects of nutrition on ADHD symptoms and treatment are flawed and go against common sense and our basic knowledge about physiology and biochemistry, such as studies that show that there is no relationship between sugar and behavior. Some of these studies are funded by companies with an interest in downplaying the adverse effects of certain foods or ingredients on health, and many are published in journals deriving a substantial percentage of their revenue from advertising purchased from these companies.

There is evidence linking nutrient deficiency with ADHD. In terms of solutions, many practitioners advocate the use of supplementation. Supplementation can be effective in correcting a deficiency, but is not a permanent solution. In fact, there is increasing evidence that long-term supplementation many cause numerous health problems.

The best solution is to improve the diet of the child, overall, eliminating as many processed, packaged and fast foods as possible, decreasing the amount of fat and animal product in the diet and consuming a diet primarily consisting of fresh raw fruits, vegetables, grains, legumes, nuts and seeds.

There is no question that it can be difficult to get children to eat lots of fresh fruits and vegetables, even though this dietary change can be an important component in improving the child’s condition. One helpful tool is Juice Plus, an encapsulated fruit and vegetable product offered by NSA. 17 different fruits, vegetables and grains, many of which most kids don’t particularly care for (like beets and kale) are offered in capsule, chewable or gummie form. Although I do not recommend this as a replacement for conversion to a diet emphasizing fruits and vegetables, it can provide a valuable support system for both children and adults. Another great tool offered by the makers of Juice Plus is Complete, a meal replacement drink mix containing absolutely no questionable ingredients and lots of densely nutritious foods. When mixed in a blender with plant milk, fruit and ground flax seeds, kids love it.

The correlation between diet and health is not limited to ADHD, but extends to many other diseases as well. Parents must be made to realize that the best gift that can be given a child is the gift of good health, which means eating a healthy diet! Pamela A. Popper, PhD

About JUICE PLUS+

JUICE PLUS+ is based on recommendations of the Canadian Cancer Society, the Heart and Stroke Foundation, the Canadian Diabetes Association and the guidelines of Canada's Food Guide. That is, an individual needs 5 to 10 servings of fresh raw fruits and vegetables per day. JUICE PLUS+ is 17 raw, vine ripened fruits and vegetables that have been picked, juiced, and had all the water, salt and sugar removed, and then dehydrated at specific temperatures to protect the integrity of the vitamins, nutrients and minerals found in whole foods. Rather than taking isolated or fragmented vitamins or minerals, you get a WHOLE FOOD supplement. By taking 2 fruit capsules and 2 vegetable capsules per day we are able to get the equivalent of 8 out of the 10 recommended daily servings. If we give our body whole foods instead of isolated or fragmented vitamins and nutrients, our body knows what to use most efficiently.

JUICE PLUS+ is the most scientifically documented nutritional supplement in history, and studies showing its effectiveness are published in peer-reviewed journals, available on the website below. Start eating a healthier diet today! If you can’t always eat enough fruits and vegetables every day, Juice Plus can help ensure that you and your children get proper nutrition. For more information about JUICE PLUS+ contact:

KAREN & D. ###-###-####
email: ____@____.com
www.yourhealthyourchoice.ca

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L.R.

answers from San Diego on

H.,

First of all I am sorry to hear what you and your family are going through. Please know there is a lot of help out there for you, you just need to know where to look. First, get in touch with the San Diego Regional Center. There are no cost services for people. Depending on her age will depend on what program they put her in but have your sister put a call in immediately.

Second, I am not sure where they are located, but if they are in the San Diego area, have them get in touch with Nancy at Brain Highways in Encinitas. She has an incredible program that helps kids with all types of disabilities, but she sees some of the biggest changes with kids who are autistic. The website is www.brainhighways.com.

Nancy, the owner, recently did a documentary on seven kids all with varying degrees of autism that have gone through her program. These kids were all moderate to severely autistic to the point of doctors suggesting institutionalization. The program she has set up, which is done primarily in the home by the parents/caregivers, has literally turned these childrens lives around. These kids after completing the hours of work on the floor at home, would no longer be considered autistic. They are succeeding in a regular classroom setting, have friends, and look forward to their futures. I urge you to contact Brain Highways. First go to their website, and if you can or your neice's family can attend a drop in to see what it is that they do and how they can help. It is an absolutely amazing program!

Good luck! My prayers are with you.

L. Ronco

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O.R.

answers from Las Vegas on

Hello H.,

I have been studying Traditional Chinese Medicine (Acupuncture and Herbal Medicine), and it has been shown to be beneficial in treating the symptoms of Autism. Is the Niece's mother aware of this? If not, she or you might want to look into this type of treatment for your Niece and find an Acupuncturist/Herbalist who might specialize in Pediatric Acupuncture. If you are in the Las Vegas area, you can call our office: Rhee's Acupuncture Clinic and ask for me, O.. We can be reached at ###-###-####.
Good luck, O. R

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K.P.

answers from Los Angeles on

H.,

My first question would be what services has she been referred for? I'm not sure how old she is but there are a lot of services available to her - Please email me if you need some direction -

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K.T.

answers from Los Angeles on

My nephew is autistic and has some severe food allergies in addition, including celiac's disease. My brother and sister in law have been fighting to get him the right treatment and schooling for years. The best place to start is at this website - there is lots of information and links to more information:
http://www.autismspeaks.org/
Good luck and God Bless!
K.

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M.B.

answers from Los Angeles on

Eight shots at one time?? Holly cow! I have heard of thier shots causing symptoms of Autism. My mother told me about a little girl who got her 1 year shots and soon after showed symptoms of Autisim. She was really bad, not responding to her parents in any way. Her parents brought her to a few doctors (within a few days) and they finally found a doctor who diagnosed her. The doctor gave her something that reversed the effects of a certain shot (I'm sorry I can't remember major details of the story)
When it is time for my daughter's 1 year shots, I will be breaking it up into two seperate times. I'm not taking any chances! I'm so sorry for your family.
When I told my ped, that I will be breaking up the shots, he said that there was not offical link between the getting shots and Autisim. I disagree. I don't care what my doctor say's I'm going to do what I feel in my heart.
Take care!

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S.B.

answers from Santa Barbara on

Lynn Koegel's books are the best.

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B.R.

answers from Los Angeles on

I have heard that Jenny McCarthy's book is good- her son is autistic. Tell your sister good luck!

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P.G.

answers from Los Angeles on

There are several websites that might help you. Just go to Autism (search web). It will give you a list. Also, the child's school district will have help too. We have had several autistic preschool children mainstreamed into our little private school. The parents have acquired a "shadow" an aide through the school district that accompanies the child during school hours and helps direct the child in many areas as well as giving the teachers advise and tools to help. Another helpful tool may be the book by Jenny McCarthy. Sometimes a change in diet is very helpful. What works for one doesn't always work for everyone, but a combination or just trial and error. Hope this helps. Just know that YOU are NOT alone. It has just recently been ruled that the case won on the shots causing autism.

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S.Z.

answers from Los Angeles on

My daughter is the regional director of TACA which is a parent support group for parents with autistic children. She would be more than happy to help.
She also has a website for her foundation which is solely a research-based group. They are making some remarkable discoveries. www.lymeinducedautism.com

Her phone number is on the site and she can be very helpful.

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C.P.

answers from Los Angeles on

Wow.

I looked into this after my insurance agent shared her exact same story with me. I have some books on my shelves about shots and the links. There are some amazing resources. I often sit in Barnes & Noble and spent the afternoon there. There are some great books and not so great books. You can ask your child's Dr. about resources and Autism. There are also great state run programs that cost you nothing..we found out about those from our doc.
C.

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S.B.

answers from Los Angeles on

Hi H.
I am sorry to read your story. Please, please call Thoughtful House in Austin, TX. Or go to the website.www.thoughtfulhouse.org. My dear friend works there. They HELP. And they are awesome. The sooner the better. Good luck.

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J.C.

answers from Los Angeles on

Hi H.!

I'm sorry about your niece. I am a mother of an 8 year old daughter who had a stroke when she was born. She has mild cerbral palsy and a history of seizures. Although her disability is very differnet from Autism, I feel your pain and concern. My husband and I started going to a parent support group meeting help at Granite Creek Community church in claremont. It is on the 3rd Thusrday of every month. This support group was originally put together for parents of autistic children. It has grown since and has been VERY helpful for my family. We have a 3 and 5 year old too. you might want to get in touch with J., the gal that heads it. Her son is autistic. This an awesome opportunity to connect with people in the same situation as your sister. You could even come along with her and learn fom it too. It's very hard to except your child is different but the best thing is to learn everything you can so that they can thrive in there situation. The support group is called Thriving Families. Jen's email is ____@____.com Although I don't have boks to reccommend, Jen WILL, I wish you and your sister good luck and welcome you to come and meet families in your current situation!
God Bless!

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J.H.

answers from Los Angeles on

Hi H., I am the mother of a 12 year daughter with Autism. Does your sister live near Los Alamitos ? i belong to a support group. Let me know and i will send the information. J..

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C.F.

answers from Los Angeles on

To talk w/ other autism parents on various topics, check out the new Autism Social networking (like MySpace for just autism parents). http://autismspeaksnetwork.ning.com

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M.P.

answers from Los Angeles on

hello
i just read your request,i don'tknow anything about autism but i remember watching the oprah show and she had jenny mccarthy on her show because her son was also diagnosed with autism after getting his shots. she wrote a book about her experience with it, and what she did to help her son through it,go to the web site jenny mccarthy and autism.com
and you can get some information

M.

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C.C.

answers from Los Angeles on

hi theres a book called facing autism. also go online. my son has speech and language delay, and slight autism. there is nothing to be scared about, there is alot of schools and info out there. try calling harbor regional center in torrance and have your niece tested there. good luck

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S.B.

answers from Los Angeles on

check out this web site and you sister and you ..join the chat group www.autismspeaks.org Being that the child has been diagnosed early..early intervention is critical to growth. I work in early intervention with autistic children. please feel free to contact me and I will help anyway I can. There are many services the child can recieve. I am a firm beliver that all of the resources can help...not one or the other.

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L.B.

answers from Los Angeles on

If you're in California, your niece needs to go to the REgional Center nearest her house. They will assist you with classes, social skills, IEP's at school, books. Where do you live?

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J.C.

answers from Los Angeles on

I just saw a case like this on CNN. The girl got 9 shots all at the same time and then came the diagnosis of autism a few months later. The government settled with her.

Below is the article. It is fairly recent.

http://www.cnn.com/2008/HEALTH/03/05/autism.vaccines.ap/

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B.D.

answers from Los Angeles on

Jenny MacCarthy (the actress who is dating Jim Carey)has an autistic son. She said her son was different the DAY AFTER his ONE YEAR SHOTS (she said this publicly on Oprah I think.) Anyway, I know for a fact she has written books on life and babies but I am 99% sure she wrote a book concerning her son and his Autism. I don't know exactly how educational a book written by her would be (like medical wise) but she writes her real life experiences plainly, and I think this might be a good start. Maybe it would help you better understand how your sister feels and how to help her. Good Luck with love and understanding, B.

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