I Was Just Diagnosed with Endometriosis... What Now?

I knew of a couple women with this. And, intervention to get pregnant wasn't needed. The dr told them that if they wanted a family, they just better do it soon, very soon. They each had 2 kids. What is said is that the pregnancy halts the growth of the endo, and right after, it comes back with a vengeance. Until a hysterectomy is needed.

I was diagnosed w/Endometriosis in 1997. I had the laporoscopy done and they lasered it all out (all the bad tissue).. did they do that when you had your laporoscopy? Or did they just do that to look? They took all mine out while they looked. I was told that endo. is a very unpredictable disease.. could be able to have one kid, or could be sterile from it (esp. since I had been having massive pain since I was 12 yrs. old)- I was 23 at the time of the lap. I married my husband 6 mo. later and we were told if we wanted to have babies to start trying right away, because it might take a while, and/or everytime I had a period it will be growing. Then another surgery would poss. be needed. We got pregnant w/our 1st 4 mo. after we got married. Long story short: our 5th child just turned 1 in Dec.!! So, I sure wasn't sterile! Hang in there.. if you haven't.. I would get it lasered out (but I also know the more surgeries they do.. the more the scar tissue also builds up in there too). Also.. did they say they thought your miscarriages had something to do w/the endo? From what I was told.. it would be hard to get pregnant, not keep the babies in there. My sister also had one child, then had a few miscarriages (she had low progesterone.. had to take progesterone pills, and shots, etc..).. there are a lot of women w/this kind of trouble.. maybe this is what you need? She then had baby #2, and had like 8 more miscarriages, and finally got baby #3!!! So, hang in there... I would look into possible other reasons for your miscarriages. If you would like to know more about what exactly my sister had to do, and what her diagnosis was, email/write me back.. and I'll talk to her, and get back to you. Hang in there.. and remember: it's in God's hands. God Bless you..

I have Endometriosis but found out during the c-section with my son in 2001. My doctor at the time said that each time you get pregnant the endometriosis slowly gets better on it's own. I don't know how valid that is but he seemed very up-to-date on all new procedures and knowledge.
I since have had a daughter (2004) and a miscarriage (2007).
This is probably little help to you, but my advice is to not give up and find out all that you can from lots of different sources.
Good luck and God bless.

You will be just fine. Endo is extreemly common in women and it can cause fertility problems. I have had the surgery that you are speaking of twice, two years apart. The second time I had the laprosopic (sp) surgery was to clean everything out to make sure my tubes were clear of any tissue and to get pregnant. We tried for almost a year and nothing. So after the surgery they put me on Clomid...and that very month I got pregnant and now have a beautiful teething 6 1/2 month old little boy. Endo can be painful, and it can grow in the oddest places, it can also do weird stuff to your body. In conjunction with the pain I was having I also had IBS because of it. Good luck to you and remember that lots and lots of women have this...and the surgery is not bad at all.

I can't recommend the message boards/website www.ovusoft.com highly enough. They have an entire section for women with endo. Since I don't have it, I can't really give you any advice, but I'm sure you can get some feedback from the women there.

Good luck!

They found that I had it when I was 17 I was actually told at that time that there would be very close to no chance of ever having children (because of some other problems),4 years later I was pregnant with our first, 7 months after he was born I was pregnant with our second. I strongly suspected that my endometriosis was back in 2006 due to symptoms and not getting pregnant...and we found that we were again pregnant in 2007!
I don't know it you believe in God. He created you to have children, and he wants to give you the desires of your heart!

I can say that with my last baby that while we were trying I was not eating right. I was running a lot and consuming bad calories. I started drinking lots of water, taking prenatal vitamins, and eating good things. Have you checked the health food store?

On the surgery part, a friend of mine opted for it verses the shots and within a couple of months they were pregnant and successfully brought a beautiful baby girl into the world. She said her surgery was laporscopic with little recovery time and she avoided all the side effects of the shots.

I was diagnosed with it when I was 18 and had my first tissue removal surgery and started the hormones. My body did not handle the hormones well. Instead of making me stop my period they made me be constantly on it. Which obviously led to more rapid tissue growth. But even though I stopped taking them shortly after there was still so much built up in my body. I took the hormones for two weeks and bled for over 3 months.Plus they made me sick and depresssed. I lost my job and quit school because of them.When I was 20 I got married and a month later had my second tissue removal surgery and immediately started trying for a baby. I got pregnant 8 months later and now my daughter is 5 and a 1/2 and I'm currently pregnant with my second. It all depends on the severity of the endometriosis. The tissue removal procedure was very simple they just lazered it off. If that is an option for you I would suggest tissue removal then trying to get pregnant. The hormones can really mess with your body and perhaps make it very hard to get pregnant for a while.

I do have endometriosis and I did get pregnant with my son naturally with it but each woman is different. My son was a surprise, we had two daughters and then I was diagnosed. I had the laposcopy done and my doctor said until the tissue began to build up again, my chances of pregnancy were higher but I didn't want anymore. My mother had it also and also had a hysterectomy but I have opted not to go to that extreme until I have no choice. I am now using the birth control pill that only allows 4 cycles a year and my pain has reduced so much.

Good luck,
D.

I have known several people who have had endometriosis and have successfully had children naturally. Good Luck!!

Hi J.,

You seem to have so many questions about what was said while you were "out of it" that the first thing I would recommend is that you see you Dr. for a follow up and get what answers you can from him. It is smart for you to write your questions down and bring them with you so you don't forget anything! If you are uncomfortable with your Dr. or you don't feel you are getting what you need from him, it's time to find a new one.

I have a daughter who is now 26 and was diagnoised at 17. She was told it was so bad she would never be able to have any children. When she was 20 she started the lupron shots to try and halt the endo, it essentially puts you into menopause, and it was like a living hell for her, but when you go off it is the "best" chance to get PG. This worked for my daughter and she now has a healthy happy 4 year old, but has also since then had a hysterectomy. I think she is actually one of the few that had very serious endo, her overies kept attaching themselves to her other inside parts.

Please, please before you decide anything - see your Dr. and as I said if you are uncomfortable with him, do find another!

Good luck!

N.

Sorry to hear about this difficulty you are having, and the miscarriages. I just read a book that might be of interest. It has a good background on hormones and how they influence our health. It's called What Your Doctor May Not Tell You About Breast Cancer, by Lee and Zava. It's actually of interest if you don't have breast cancer or a high risk of it. They mention endometriosis and fertility issues. Especially relevant is their discussion of how synthetic hormones are inappropriately prescribed. I would strongly recommend it to anyone considering hormone therapy for any condition.

Wishing you the best in your healing!

I was also diagnosed with Endometriosis. My doctor suggested that I have a 6 month treatment of Lupron shots. They put you in menopause for the 6 months, which is supposed to allow your uterus to shed all of the tissue from the endometriosis. The shots are very expensive and do have more side effects than making you moody. (I had hot flashes, mood swings, and put on a little weight.) I was also young when I had this treatment. I fully credit the fact that I had this treatment to the 2 successful pregnancies I had. I did not need any "assisstance" to get pregnant. Good luck and I hope this helps a little.

I have/had a history of endometriosis and three (almost grown) biological children. I believe after the first two, I had a D&C and a laser laproscopy where they removed the "bad" tissue off of both of my ovaries. I then got pregnant with the third child who is now 15. Good luck and God Bless :)

Hello. I was diagnosed with it when I was 18. They did the tissue removal and them put me on a shot that put me in a medical induced menapause. I did that for a year. Then I was able to get pregnant when I turned 22. I had no problems getting pregnant or with my pregnancy. So good luck.

Jaquelyn,

it sounds like the shots the doctor is recommending to be hormone shots.

as a Health and Wellness Advisor I would be glad to talk to you at length concerning the endometriosis and some possible natural alternatives. I would also recommend you to some doctors that will be willing to work with you in the natural realm of things instead of surgery, drugs and hormones.

If you are interested in knowing more - please do not hesitate to call/email me ###-###-####.

S. Riemann

a little about me - I started my Health and Wellness business 15 years ago when I discovered how to rebuild my health (I was totally disabled and doctors gave me NO hope)using exercise, better diet and whole food supplements, clinically proven to get results or your money back!
Today I educate and train all over the world.

I was diagnosed with Endometriosis in 1994. I had an ovarian tumor removed in 1997. My doc told me that children were out of my future. Nothing would change it. Either he was incorrect or time fixed it because my husband and I had a son in 2006 and another in 2008. I'll be 40 in April, so we are finished but I'm sure if we wanted another one, it would happen.

I don't know much about your condition, but from my own experience with doctors, I would suggest that you start seeing someone who is a specialist. General OBs work fine when there are no complications but when issues start to arise, a doctor who specializes in complicated pregnancies and fertility issues can make all the difference in the world. Just one example, I was told that I would have to do shots everyday while I was pregnant due to a minor blood clotting disorder by all of my regular OBs. When we started going to a specialist because of other complications, the specialist told me that there was no reason for me to be on those stupid shots! If you don't like the options that your doctor is giving you, get a second oppinion. If you need a recommendation for a good specialist, I know two that I would recommend to anyone.