Gluten Intolerance - Wallingford,CT

Updated on December 31, 2010
L.B. asks from Berwick, ME
8 answers

Have you been diagnosed with celiac disease or wheat intolerance as an adult? Beside the GI symptoms, what other symptoms did you have, did you experience fatique and generalized joint and muscle aches and pains? How did you transition to a gluten free diet? Are there any good online resources?

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K.M.

answers from Chicago on

I do not have issues with gluten, however I do eat many gluten free products. Sam's Club has great chicken sausages in many flavors that are gluten free, and Whole Foods Market has a great selection of gluten free products that most associates are more than happy to talk to you about.

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G.B.

answers from Boise on

Anyone who has onset food intolerance *and fatigue *and joint pain- this person needs to have a saliva cortisol test done (NOT a one time morning cortisol test, a saliva test). All three of these symptoms are INDICATIVE of Low cortisol(hypercortisolism/hyperaldosteronism)- adrenal hormones responsible to:
* keep body inflammation in check (joint pain= inflammation),
Keep food/smells/topical allergies in check (allergy= immune system in overdrive)
Keep the body in energy (fatigue= low cellular oxygen from an acididic metabolic state).
Cortisol maintains stomach acid
cortisol maintains proper blood sugar regulation

People with low cortisol have problems metabolizing protiens. Gluten is a protien composite.

Also may be seen in low adrenal cortisol are:
bowel problems (diahrrea, constipation or alternating)
sleeping issues (cant get to sleep or wakes in middle of night)
migraines
sensitive to light/smells
common spots of joint pain is KNEES, hips, low back. In advanced cases
muscle pain in upper thighs after exertion will be seen, which is better after rest. Even more advanced cases will see general muscle wasting/lack of muscle strength.
hypoglycemia

Research 'Cortisol' and 'Aldosterone' on wikepedia to learn more about these hormones and what they regulate.

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L.C.

answers from Kansas City on

my husband and both of my children have celiac disease.

my husband was not diagnosed until after our daughter. But before he was diagnosed he always felt tired. He got sick with colds often. If he took me out on a date there was literally times that we would not make it home in time because everything would go straight through him in a matter of 30 minutes. He would go to the bathroom 5-10 times a day.

our daughter was the opposite. from the time she started solid foods and was off of breast milk she would get EXTREMELY constipated. so the point where she was in the ER getting barium tests and on a daily laxative and had hemorrhoids. she was also very thin, very pale, with very large dark bags under her eyes. She spent almost a year of her life vomiting every night. projectile sulfur smelling vomit and often had sulfur smelling burps.

We found out my daughter had it first, totally on accident (long story). but within 2 months of being on a gluten free diet she grew 2 inches and gained 7 lbs. she has been gluten free for 2 years now and is in the 90th percentile for height, 50th for weight, and is very bright. She looks a million times better too. When she went gluten free i made the whole family and my husband's stomach issues all went away. There have been a handful of times that they have gotten gluten and my husband has water stools and my daughter has violent vomiting to the point her eyes hemorrhage.

Our son has been on a gluten free diet since birth. with his dad, grandpa, sister and some cousin all having celiac disease (it is common in irish genes) he had a 70% likelihood. we didnt want him to go through the things our daughter did, so we started him gluten free. he has gotten into gluten a few times and when he does he gets extremely bad stomach cramps, gas, and then a very loose stooled diaper. definitely not fun for anyone.

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S.H.

answers from Hartford on

We just discovered that my husband has Fibromyalgic symptoms along with symptoms of gluten intolerance (bloating after eating wheat products). We have changed our diet drastically (gluten/dairy free and borrowing a lot of concepts from the Gerson and a PH balanced diet). His symptoms (body aches, exhaustion, headaches, irritable bladder) have been greatly reduced, but not completely eliminated. He says that when he follows the diet strictly, he is symptom free.

I transitioned our family to gluten free, by giving away all our bread/pasta products and replacing them with rice and other gluten-free alternatives (we chose not to eat bread since rice bread is a little yucky). It's easier than you might think - the grocery store is chalk full of alternatives these days...plus, if you follow the ph balance diet, you'll be focusing more on veggies and less on the breads...good luck!

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C.H.

answers from Denver on

My mom is gluten free, dairy free, sugar free & meat free due to her fibromyalga, I know not celiac but the diet is pretty close. Here are some helpful websites I have found:
http://www.elanaspantry.com/ (every recipe has been a HIT!)
http://glutenfreegoddess.blogspot.com/ (LOVE her turkey & sweet potato enchiladas!)
http://gluten-dairy-sugarfree.com/?p=1322
http://www.gfgoodness.com/
http://www.glutenfreeforgood.com/blog/

In regards to products, we have fallen in love with Tinkyada Pasta (rice based), can't tell the difference--great texture & taste.

At first the transition was a bit difficult but once you get used to the new way of eating & cooking it will be second nature. Best of luck!

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H.L.

answers from New York on

I was diagnosed as wheat and dairy intolerant a year and 1/2 ago. I was shocked as I never had any digestive issues really. But I was tired so often and was waking up with headaches. My legs didn't ache but often felt like I'd been walking around a shopping mall all day. I went cold turkey and after a couple of days, felt like a new person. With intolerance, you don't have to necessarily make sure there is absolutely no gluten in a product like someone with celiac does. For instance, soy sauce has some gluten but I never notice an issue when I have some because I think it's just a trace amount. It's very tough cutting out BOTH dairy and wheat but just wheat doesn't seem so bad to me now. For instance, there's a wheat free pizza crust that's good if you had real cheese on it. I forget the name but it's something odd that has "biking" in it or something like that. If you google it, look for one that pizza places order from now. I've been in many pizza places now that offer it. There are good crackers and the pasta I like best is a mix of corn and rice. Some people swear by quinoa but I haven't made any progress with that. For the most part, cutting the stuff out of my diet has been totally worth it. It's much more motivating when you just feel better and for the most part I just think "don't go there" about certain foods. And I was a HUGE pizza fan. I love love love pizza. But for me, hopefully this isn't forever. My doctor said I developed this intolerance by eating too much and if I am off it for awhile, I could slowly reintroduce it in smaller quantities. That happened to my SIL.

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D.F.

answers from New York on

I have severe gluten intolerance and when I was eating gluten, I had SEVERE fatigue, muscle aches, muscle spasms (noticable), foggy thinking, and constant dizziness. When I got off the gluten, I went cold turkey. I started by reading labels... EVERY label I bought a going GF book to help me along the way and asked my husband to help me. If he saw me sneeking a cookie, he took it away and reminded me that if I ate it, I would be paying for it later (in stomach pain I mean). I also had kidney stones when on the gluten , but I dont know if they are related. I havnt had a kidney stone since since I went on a GF diet. I have been on a GF diet since 2007 and I fell Normal. I do not feel tired all the time and my muscles no longer spasm. It did take me almost a year of constant trying after I went on the GF diet to get pregnant with my first child.

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