Epilepsy

My mother-in-law does neurofeedback sessions. She received some intense training out east. She mostly uses it on her two kids (ages 8 and 9) who suffer from ADHD. It has proved to be quite beneficial -- it aids in the development of certain parts of the brain. I asked her if she's heard of neurofeedback helping with autistic disorders and she said yes. I think it'd be worth a try for your son.

I have had no experience outside of my teaching middle school for epilepsy.

I am a single mother of a 5 year old and he still sleeps in my bed. He is happy, I get sleep, we're good.

I have suffered from migraines for years and have experiemented with biofeedback. It works because I am aware of my surroundings and what the triggers/problems are. If you can get your young child to figrue this out, wonderful!

My sister had epilepsy when she was young. I am not sure what neurofeedback is, but she was on Dilantin for years and finally outgrew the epilepsy. Is there a chance your son will outgrow his seizures? If not, and you think the treatment might help, perhaps you should try it. 5 seizures an hour sounds so difficult; I imagine it would be hard for him to go to school, have fun with friends, etc. If this therapy is the only way to give him a chance at a normal life, you need to weigh the positives against any possible side effects, and make an educated decision. Do what is best for your son and your family.

I have heard good things about neurofeedback-I have not used it personally. Another option is cold-laser treatments, I have had 3 closed head injuries and sometimes have petite seizures-the cold laser treatment has really helped with my episodes-I have to get extremely tired to have one now. The lady who does the treatments uses them to keep her sons terets(?) syndrom in complete control. Cold laser helps open up the neuro pathways so the signals don't short out and get stuck in places they don't belong. It is non-intrusive and is very relaxing- Ruthanne wrks out of Sumney Wellness Center in Longmont,CO

Hi...
Maybe by this could help. I have been going to this woman for years.
She does "bio feedback" which is a computer reads the entire body for stresses and imbalances. She is one of the best chinese medicine and accupunturist in Colorado but also does this "bio feedback"
Not sure exactly what neuro feedback is but this may provided some insight!

Worth a phone call.
Jessica Steyn ###-###-#### ____@____.com

Good Luck
S. J

I don't know anything about neurofeedback but you have written my story...my son is 10, has aspergers, ADD and recently diagonsed with epilepsy mixed variety with complex partial and generalized seizures. He was minimally controlled but has had 2 seizures in the past 2 weeks so we are back at square one. He takes depakote and has side effects taht the is currently being medicated for..so we take meds to control side effects of meds to control seizures that don't work.

I hope you find information about neurofeedback.

Hi S.,
My husband and I market a juice that is 100% natural and has proven to stop seizures. This is something we strongly suggest you try. My husband works with a lady who's son was Autistic (similar to Aspergers) and here was what she wrote to my husband a few weeks back.

David

I would love to tell you about my son Michael. He has struggled most of his life with completing simple tasks like, getting ready for school, completing homework, and cleaning his room. He was not able to make and keep friends and had problems with his fine and gross motor skills. Loud noises bothered him and he had difficulty sitting still. At times he was angry and difficult to be around. My twin sister is a Naturopathic Doctor and together we tried various things to help him....I did not want to put him on medication. She had me try a dairy and gluten free diet and we did notice some improvement. We decided to take a look at his brain chemistry. The results from test were consistent with the brain chemistry of those with autism.

In the summer of 2006, I was introduced to Xango and it has been life changing for Michael. A friend gave me a bottle to try and I looked at the website to see what to do with it. When I saw that it was helping people with ADHD and Autism I decided to have Michael try it. After two weeks of him taking one ounce of it in the morning, he came to me and said "Mom, I don't know what is in that juice but I feel great?" I started to notice that he was riding his bike (something he was not able to do before) and he was happy and fun to be around (no more rage). I realized that he had been depressed before and this was no longer the case. When school started I was waiting for the usual concerns from his teachers, but didn't hear a thing from them. I decided to go visit him at lunch time (he hated lunch in the past because no one wanted to sit with him). I walked into the lunch room expecting to see him alone and saw him surrounded by a group of kids who were laughing with him and enjoying his company....I stood there with tears running down my face, I was so happy for him. As the year progressed, his teachers asked me what I was doing with Michael because he was improving so much.....he even made the honor roll! Now, he completes his homework on his own without being asked and in the morning he is able to get himself ready and out the door on his own. Having a child like Michael is a challenge for the entire family and I would tell anyone in this situation to give this juice a try. It has been life changing for us. I wish I would have known about it years ago!

Diane Stamper

Go check our website at www.davidstephen.themangosteenrevolution.com
Feel free to call me at ###-###-####

Sincerely

A. Stephen

Hi S.,

I have not done neurofeedback myself but I worked with a company that used it all the time for their clients. Their clients had a range of disabilities, including seizures, mental retardation (mild), mental illness. They swore by it.

It know it sounds really bizarre, but they swore it calmed their clients down and helped with seizures. I think it is expensive and insurance may not pay for it.

Even the directors of the company tried it and they said it was very soothing.

Marci

Go ask your doctor about the vagal nerve stimulator. it helps. Its a simple procedure that works over time and sometimes right away. Its a small round piece of plastic that has two wires attached to it. The wires go around the vagal nerve in your neck (its the nerve that runs along right beside the vocal cords) and it is activated every few minutes. Its a device that can be programed to operate every few minutes to every minute. What it does is sends massaging impulses through the wires and it signals the brain (it doesn't touch any part of the brain) it signals that the brain is having a seizure and helps it slow the severity or sometimes the whole seizure to a stop. I've told you the basic details but its not an uncommon procedure. its a out patient surgery but not severe. Ask about it. I have it and no one can notice it and it works shorten the length of my seizures. i have gramal by the way.

Hi S.,

I Have heard of neurofeedback. Here in Idaho it is called bio-neuro-feedback. I am in the social work field and work with children and adults with disabilities, mostly autism, and asberger's. I know that it is supposed to help the brain waves,and calm things down in the brain, and the whole body. I also know that it is really expensive, but my clients that have done it have been sooo pleased with the results. They have reported that their child is more calm, and the seizures have decreased. Also there is a seizure clinic in Boise Idaho that specializes in finding exactly where the seizure starts, and then they are able to accurately prescribe medications and therapies. I have also heard good things about this clinic. It is hard to make time to go there though, because they want you to be there for one week, and have your son hooked up to machines, that monitor the amount of seizures, the intensity, and where it stems from.
I hope this information helps you.

Sincerely,
V. S.

Hi
S. I have a friend who has a four year old son with a severe sizure disorder, if you would like you can email me @ ____@____.com and I will give you her email address, I think you may learn a lot from her about your options for treatment.
C. C

Stepanie,
Have you ever heard of reflexology? Your son would seriously benefit from it. there are some great books that can teach you how to gently message your sons feet in the right places to help him. You might even find a reflexologist in the phone book. Some message therapists know how to do it also. This might be a good place to start

You may get some help at www.truehope.com . Their EMPower+ helps alot of people. Let me know how it turns out.
David & Rachel

I don't know if this is the cause but my brother-in-law started having seizures because of a brain tumor. It was not cancerous. Just a thought.