Childhood Apraxia

Updated on August 25, 2008
J. asks from McKinney, TX
4 answers

Hello everyone! My son has been diagnosed with verbal apraxia and I'm looking for other moms and kids like us, hopefully in the Mckinney area.

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So What Happened?

THANK YOU, THANK YOU, THANK YOU.

I was basically looking to get to know some others like us and possibly start up a group. I've never met anyone like Toby and I'm a bit desperate for someone to please "GET IT" about what he's going thru. I see all of the other kids Toby's age and the comparison between him and "normal" (sorry, just lack of a better term) kids is just so startling. His Head Start teacher was forewarned about his condition and then today during his first day she called my husband commenting on it and saying how hard it was for her to understand him. Talk about adding the stress on an stressful day... I worry about this little one and I'm just wondering how other Mama's cope with this. Toby's been in therapy since he was 2 1/2 & in the last several months he learned to say his 1st 3 word sentences. He goes to therapy 5 times a week and has Head Start to boot. I know that we are BLESSED because I know that so many out there have it worse than us and I don't want to sound like I'm ever complaining, I'm just worried and although I try to find out as much as I can, I still feel so inadequate in helping this little angel out. So ANY input that ANYONE has, ANYONE who's ever dealt with this, or hell anyone who just wants to weigh in with a good idea period, is SO appreciated and welcomed. Well, I'll quit blabbing : ) and thank you again for responding, I'd love to hear more from you!

More Answers

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K.B.

answers from Dallas on

J.,

One of my sons also has verbal apraxia. He started speech therapy at 18-19 months (he's now 7). We're in Plano. Since your son is now 4, he could do speech therapy through your school system. If you are open to alternative treatments though, let me suggest Integrative Pediatric Therapy (www.integrativepediatric.com). My son was in speech therpy for a couple of years and by 3 1/2 only had a dozen words. One summer, I decided to enroll him at the Callier Center in Richardson for speach and to look for other help. I decided to give Sally Fryer's group a try for a few months. We had him tested there and did twice a week PT/OT and once a week craniosacral therapy. At the end of the summer, his entire speech was in and we were only working on articulation. When he returned to school (he was going to the PreK communication class at Beaty in PISD), his speech teachers couldn't believe it. It was truly amazing!!! He's now 7 and goes to speech twice a week at school for some articulation. His issues are mostly when he's in conversation. Family and friends are amazed at how well he speaks.

I wish you the best of luck. He will pull through this with patience and help. If you want to talk more, please feel free to email me at ____@____.com.

K.

1 mom found this helpful

G.C.

answers from Dallas on

J., my daughter Hannah is almost 2 1/2 (much younger in contrast to Toby), but she has verbal apraxia and we live in McKinney. I could go into all the details of our experiences (diagnosis, how we communicate, what therapies we use, her symptoms, all the endless hours of research I've done on apraxia...) but how about we wait on that --- Let me know if you want to talk, even though our kids' ages are almost 2 years apart.

I personally would LOVE to talk to another mom whose kid has apraxia. It's such an uncommon diagnosis, and I've found about 3 bulletin board sites online that offer great access to other parents, but I'd really like to be able to talk IN PERSON to someone in the area and not be on the Internet all the time, reading posts.

We can exchange emails if you're interested...

Gabby

1 mom found this helpful
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L.D.

answers from Dallas on

My 9 year old son has severe verbal apraxia. He also has Down Syndrome. He uses some sign language and just got a Dynavox V to help him communicate.

Personally, I would start private speech therapy and get speech therapy through the school district. There is a place called East Side Speech that is in Plano. They are really good and seem to understand apraxia.

L.

1 mom found this helpful
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J.H.

answers from Dallas on

Hi J.,
There is a good website www.apraxia-kids.org. I don't know if they have support groups but it is a great source of information. I am a speech pathologist in North Dallas and see many kids with apraxia. It is more common than you think and most kids do quite well with the right therapy.
Good luck.
J.
www.speechtherapy4kids.com

1 mom found this helpful
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