Are There Moms Out There with Children with PDD?

My son was daignosed in Feb 2007 when he was 33 months with Austism Spectrum Disorder, Sensory Disorder. He is speech delayed, fine/gross motor skills delayed. He is Very Loving, affectionate. He loves to cuddle and tells that he Loves me and gives me kisses all the time. He is also sensitive to sound, food textures(he won't eat corn,meat,green beans,peas)
He hads a hard time w/eye contact, he flapps his hands when he's excited, perfers to play by himself as well than other children,he drifts/spaces off at times.
He's overly active, everything has it's place and has to be in order.
He counts in spanish and english to 25, knows all his shapes even octagon, all his colors, he memorizes everything. He knows word for word the entire movie of Land Before Time, Cars and has several songs memorized from CD's that I have(country and worship songs)

My DS is in Speech Therapy,PPCD school which he does well. We are looking for an OT to get him started in ASAP.

I'm a Single mom so it has definitely been challenging and a struggle but wanted to let you know that you are not alone.
Hope this helps.
I Pray to God everyday and that helps me a lot.
M.

My son was first seen by therapists and specialists at age 20 months for what we later gained the diagnosis of PDD/Autism.

It is better to treat it as though it IS than to not do anything. If it turns out NOT to be PDD, then you still have helped her to progress in any and all aspects that she is behind in now. If it IS PDD, then you are headed in the right direction.

A little word of wisdom: Early intervention is the key! For every month lost, it can take several to catch back up.

Message me if you want suggestions of therapies, treatments, schools, etc. I will be here for you. Be sure to GET CONNECTED with other moms. It helps to remember that you are NOT alone.

Blessings to you: one of the chosen few.

P. <><

Yes, there are lots of us. I would definately have your daughter evaluated. If you think there is something, you are likely right. Our first neurologist told us our son did not have Pdd-nos...but he does. Fortunately we had friends who were persistent in recommending we have him evaluated a second time. He is 10 now. And still beautiful. We were lucky to catch it so early. Many more years of therapy if you catch it early, and a much better chance of recovery. Pervasive Developmental Disorder-Not otherwise specified is his official diagnosis. It is Autism, just a gentler lable. Same thing. Good luck, you are NOT alone.

My son was diagnosed PDD about a year ago (at almost two)- same specialists - he seems to be outgrowing some of it - he has caught up with motor skills, he has some words - receptive has increased greatly, and he knows his name. He has trouble relating to others, though, and can be physically cruel to adults and other children (for which he always receives consequences).

Autism is now seen as a spectrum - hence, the Autism Spectrum Disorder which spans from PDD through Aspergers to Autistic Savant to 'Traditional' Autism.

Yes, it kinda sounds like your daughter may be on that spectrum too. I just wanted to let you know that it's not the end of the world.

S.

My 5 year old son was diagnosed last year with a sensory disorder. I never thought he had a problem...I just thought he was particular about certain things. He doesn't like his hair wet, his clothes wet or dirty, socks have to be lined up just right on his feet. He doesn't like his hair cut or fingernails or toenails cut. He doesn't like a lot of food due to textures..he hates ground meat! He smells everything...including toys, food, clothes. Sometimes he will lick a toy as well. He decides if he likes things by the smell or the way it feels. He hates loud noise. He gets upset with the vaccum or his sister crying. Just little things upset him. He too would rather play by himself. Toys to him are ruined if they are scratched or paint chipped. But I also feel like he is a mad genius. He is very smart, has a memory from stuff when he was 2, tells me and my husband how to play video games.

He went 4 years of his life and I started noticing little things that I mentioned above. I have had him in a private school since he was 2. Last year the teacher moved his chair while he was sitting in it and he screamed for 15 minutes. The only thing we could figure is he thought he was going to fall. It is frustrating and sometimes trying as a mom to not understand your kid and why is this making him mad. His speech is off as well. He doesn't pronounce things right. He also is slow on functions like holding pencils and cutting with scissors.

I had him in Baylor Our Children's House for therapy but was frustrated by the 30 minute activity that I was paying $100+ for that 30 minutes that I could do at home with him.

I'm not sure if this is what kind of problem your daughter has but it sounded very similiar to my son. You may want to check with your local school district and see if she is eligible to start Pre-K in the special education department. I did that with my son and it really seems to be helping a lot.

Good news is this is something they can and will out grow.

Hope this helps. Let me know if you need to talk.

I too have a child with PDD which is actually about to change to Autism. My son is now five and like your daughter didn't have speech until he was older. We enrolled him ECI when he was two and he went into the public school system when he was three. My advice for you is not to get discouraged, these children can change so much, that is why in many cases children are not officially diagnosed until they are five or six as so much can change. When I look at how far my son has come in the last couple of years I am so encouraged even though we still have a ways to go. Play with your daughter, encourage her to use her words, start with whatever she is interested in and go from there, whether it is books, puzzles or whatever. The earlier you start intervention the best chance she will have.

Hi Trish,
my son (29mo) has been diagnosed with PPD NOS just a month ago. He fits a lot of the criteria you have mentioned about your girl, minus 30 words. He only signs, and not everything. He tries to say stuff, but can only do sounds, not words.
Severe sound sensitivity, poor eye contact, and some quirky behavior. He has improved a lot since we started doing OT. Speech therapy hasn't helped yet.
You are not alone, there is such a huge support group for PPD. You and I and other "newbies" have a paved path to services, therapies and other help. Shoot me an e-mail if you ever want to chat.
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